Laurence K M, Beresford A
Dev Med Child Neurol Suppl. 1975(35):123-8. doi: 10.1111/j.1469-8749.1975.tb03591.x.
Fifty-one adults with spina bifida (28 men and 23 women aged between 17 and 56 years) were interviewed in their own homes in South Wales. 17 were completely continent, 10 were incontinent and the remainder were continent to some degree. Seven of the 51 had no close friends but almost half the total had five or more close friends. Of the 29 who were unmarried, nine had a steady relationship but 13 felt that they were disqualified from such a relationship because of their disabilities. 11 men and 11 women were married and a total of 39 pregnancies had come to term, resulting in 32 normal children, five stillbirths (two with anencephaly) and two children with spina bifida. The risk of having an affected offspring when one of the parents has spina bifida (based on the combined London, Munster and Cardiff series) is 1 in 23. It is suggested that the children now growing up who have received 'total care' will be more handicapped than the adults in this series.
在南威尔士,研究人员对51名患有脊柱裂的成年人(28名男性和23名女性,年龄在17至56岁之间)进行了家访。其中17人完全能够自主控制大小便,10人大小便失禁,其余人在一定程度上能够自主控制。51人中有7人没有亲密朋友,但几乎一半的人有五个或更多亲密朋友。在29名未婚者中,9人有稳定的恋爱关系,但13人认为由于自身残疾,他们没有资格拥有这样的关系。11名男性和11名女性已婚,总共39次怀孕足月,产下32名正常儿童、5名死产儿(其中2名患无脑儿)和2名患有脊柱裂的儿童。当父母一方患有脊柱裂时,生育患病后代的风险(基于伦敦、明斯特和加的夫的综合数据)为1/23。研究表明,接受“全面护理”长大的孩子可能比该研究中的成年患者残疾程度更高。