Goldie R L, De Matteo D J, Wells L M, Aykroyd G R, King S M
Department of Social Work, Hospital for Sick Children, Toronto, ON.
Can J Public Health. 2000 Sep-Oct;91(5):353-6. doi: 10.1007/BF03404806.
Parents living with HIV and their children face complex medical and social problems. Whether the children are infected or not, they are all affected by the presence of HIV in a parent. The purpose of this article is to describe the problems of families with HIV and to propose social planning measures to respond to their psychosocial needs. It is based on a multicentre study that included in-depth interviews with 110 parents representing 91 Canadian families living with HIV. The study's findings and recommendations were reviewed by parents with HIV, social workers specializing in helping affected families, and a multidisciplinary consensus conference. This process identified six areas needing attention: stigma and disclosure; promoting and supporting family health; planning and transitions for the care of children; economic issues; cultural and immigrant issues; and education, advocacy, policy development, and research. Recommendations for action were made in each area.
携带艾滋病毒的父母及其子女面临着复杂的医疗和社会问题。无论子女是否感染，他们都会受到父母感染艾滋病毒这一情况的影响。本文旨在描述艾滋病毒感染家庭的问题，并提出社会规划措施以满足他们的心理社会需求。它基于一项多中心研究，该研究包括对代表91个加拿大艾滋病毒感染家庭的110位父母进行的深入访谈。艾滋病毒感染的父母、专门帮助受影响家庭的社会工作者以及一个多学科共识会议对该研究的结果和建议进行了审查。这一过程确定了六个需要关注的领域：耻辱感与信息披露；促进和支持家庭健康；儿童护理的规划与过渡；经济问题；文化和移民问题；以及教育、宣传、政策制定和研究。针对每个领域都提出了行动建议。
