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多中心研究与WISECARE经验。欧洲护理工作流程信息系统。

Multicentre research and the WISECARE experience. Workflow Information Systems for European Nursing Care.

作者信息

Kearney N, Miller M, Sermeus W, Hoy D, Vanhaecht K

机构信息

School of Nursing and Midwifery, University of Glasgow, Scotland.

出版信息

J Adv Nurs. 2000 Oct;32(4):999-1007.

PMID:11095241
Abstract

The benefits of collaborative research are becoming recognized increasingly within the profession of nursing due to the associated increased likelihood of funding, variety of practice settings and increased access to resources that collaboration brings. While such benefits have made collaborative research one of the most desirable strategies for achieving the goals of research, the potential problems of language and communication, culturally sensitive instruments, access to subjects, availability of technology and lack of research resources have complicated collaborative international research initiatives. Review of the literature, although encouraging such initiatives, does little to provide information regarding the processes involved in multinational collaboration or the associated advantages and disadvantages to guide those embarking on such large scale, multinational, cross-cultural studies. The diverse meanings of collaboration within research initiatives further hamper this understanding. Positive definitions focus on aspects such as sharing expertise, making a valuable contribution to the research and ultimately shared ownership of the accomplishments of the research. One such research project led by nurses was the WISECARE project. WISECARE (Workflow Information Systems for European Nursing Care) was funded by the European Commission and aimed to improve cancer nursing practice and ultimately patient outcomes through the integration and utilization of state of the art information technology. Such a project was developed as a result of nursing's apparent invisibility within health care delivery and the problems experienced by nurses in articulating their worth within an increasingly cost-conscious health care system. Oncology care was selected as the domain for the project not only because this speciality of nursing already has an established network of nurses throughout Europe in the European Oncology Nursing Society (EONS) but also because the practice of cancer nursing encompasses all aspects of nursing care. This paper will address the advantages and disadvantages associated with collaboration, using the WISECARE project as an example.

摘要

由于合作带来的资金获取可能性增加、实践环境多样以及资源获取机会增多,合作研究的益处日益得到护理行业的认可。虽然这些益处使合作研究成为实现研究目标最理想的策略之一,但语言与沟通、文化敏感工具、受试者获取、技术可用性以及研究资源匮乏等潜在问题,已使国际合作研究计划变得复杂。文献综述虽鼓励此类计划,但几乎未提供有关跨国合作所涉流程或相关利弊的信息,以指导那些开展此类大规模、跨国、跨文化研究的人员。研究计划中合作的不同含义进一步妨碍了这种理解。积极的定义侧重于共享专业知识、对研究做出宝贵贡献以及最终共同拥有研究成果等方面。护士主导的一个此类研究项目是WISECARE项目。WISECARE(欧洲护理工作流信息系统)由欧盟委员会资助,旨在通过整合和利用先进信息技术来改善癌症护理实践并最终改善患者结局。这样一个项目的开展,是因为护理在医疗服务中明显不受重视,以及护士在一个日益注重成本的医疗体系中难以阐明自身价值。选择肿瘤护理作为该项目的领域,不仅是因为这一护理专业在欧洲肿瘤护理学会(EONS)中已经拥有遍布欧洲的护士网络,还因为癌症护理实践涵盖了护理的各个方面。本文将以WISECARE项目为例,探讨与合作相关的利弊。

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