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营造关爱文化:为癌症患者提供支持性护理。

Creating a culture of compassion: developing supportive care for people with cancer.

作者信息

Richardson Alison

机构信息

Palliative Nursing Care, Florence Nightingale School of Nursing and Midwifery, King's College London, James Clerk Maxwell Building, 57 Waterloo Road, London SE1 9NN, UK.

出版信息

Eur J Oncol Nurs. 2004 Dec;8(4):293-305. doi: 10.1016/j.ejon.2004.07.004.

DOI:10.1016/j.ejon.2004.07.004
PMID:15550359
Abstract

Receiving the 2003 Distinguished Merit Award from the European Oncology Nursing Society is a great moment in my professional career. It is also a time for reflection. We can easily become immersed in the specifics of our work and forget the larger picture. An opportunity such as this allows me to step back, reflect and review what I have accomplished. It also challenges me to think about the totality of cancer nursing and cancer care, look at where we have been and about where we should be going. At the heart of this lies the concept of supportive care. I would like to consider three pertinent areas. First, I will define what I consider the domain of supportive care in cancer to be. Second, I will look at what is needed to further supportive care for people with cancer. This involves building the discipline of more rigorous symptom assessment and documentation; better management of the symptoms and concerns that confront people with cancer; moving beyond the traditional framework of treatment and care, embracing a more integrated approach; addressing quality whilst at the same expediting the delivery of supportive care services. Third, I would like to consider the challenges to reform that this presents for cancer nursing and cancer nurses. A road map for change will be presented which highlights both the necessity to promote a supportive care culture whilst simultaneously building a dedicated infrastructure of staff and services. Nurses must play a key role in supportive care. Because of our unique clinical and research base, we are primed to assume leadership roles in both these spheres. Mutual valuing, partnership and shared working are the only means of delivering enhanced cancer care. We should grasp opportunities, confident that together we have the skills and knowledge to move forward. Today is yesterday's tomorrow. We cannot do anything about yesterday, but we can do something about today to ensure tomorrow is how we want it to be. We can become what we dream, let us live that dream outside and really drive forward the care we provide for people with cancer and their families.

摘要

获得欧洲肿瘤护理学会2003年杰出贡献奖是我职业生涯中的一个重要时刻。这也是一个反思的时刻。我们很容易沉浸在工作的细节中而忘记大局。这样的机会让我能够退后一步,反思和回顾我所取得的成就。它也促使我思考癌症护理和癌症治疗的整体情况,审视我们的过去以及我们应该前进的方向。这其中的核心是支持性护理的概念。我想考虑三个相关领域。首先,我将定义我所认为的癌症支持性护理的范畴。其次,我将探讨为癌症患者进一步提供支持性护理需要什么。这包括建立更严格的症状评估和记录规范;更好地管理癌症患者面临的症状和问题;超越传统的治疗和护理框架,采用更综合的方法;在加快提供支持性护理服务的同时注重质量。第三,我想考虑这给癌症护理和癌症护士带来的改革挑战。将提出一个变革路线图,强调既要促进支持性护理文化,又要同时建立专门的人员和服务基础设施的必要性。护士必须在支持性护理中发挥关键作用。由于我们独特的临床和研究基础,我们有能力在这两个领域发挥领导作用。相互尊重、伙伴关系和共同协作是提供更好癌症护理的唯一途径。我们应该抓住机会,相信我们共同拥有向前发展的技能和知识。今天是昨天的明天。我们无法改变昨天,但我们可以为今天努力,以确保明天如我们所愿。我们可以成为我们梦想成为的人,让我们将梦想付诸实践,真正推动我们为癌症患者及其家人提供的护理工作向前发展。

相似文献

1
Creating a culture of compassion: developing supportive care for people with cancer.营造关爱文化:为癌症患者提供支持性护理。
Eur J Oncol Nurs. 2004 Dec;8(4):293-305. doi: 10.1016/j.ejon.2004.07.004.
2
The professional role of breast cancer nurses in multi-disciplinary breast cancer care teams.乳腺癌护士在多学科乳腺癌护理团队中的专业角色。
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Listening to the voices of patients with cancer, their advocates and their nurses: A hermeneutic-phenomenological study of quality nursing care.倾听癌症患者、其倡导者及护士的声音:一项关于优质护理的诠释现象学研究
Eur J Oncol Nurs. 2008 Dec;12(5):436-42. doi: 10.1016/j.ejon.2008.05.008. Epub 2008 Oct 8.
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Role of the radiation oncology nurse.放射肿瘤学护士的职责
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Does vicarious traumatisation affect oncology nurses? A literature review.替代性创伤会影响肿瘤护理护士吗?一项文献综述。
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J Clin Nurs. 2006 Mar;15(3):281-9. doi: 10.1111/j.1365-2702.2006.01308.x.
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[Nursing care in the supportive care service].[支持性护理服务中的护理]
Soins. 2006 Mar(703):43, 46-8.
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PRISM: Priority Symptom Management Project phase I: assessment.PRISM:优先症状管理项目第一阶段:评估
Oncol Nurs Forum. 2001 Nov-Dec;28(10):1585-94.

引用本文的文献

1
Cancer patient and clinician acceptability and feasibility of a supportive care screening and referral process.癌症患者及临床医生对支持性护理筛查与转诊流程的可接受性及可行性
Health Expect. 2015 Jun;18(3):406-18. doi: 10.1111/hex.12045. Epub 2013 Jan 31.
2
'Quite an awkward situation to be in': perceptions of patients, carers and health and social care professionals of the supportive cancer care in British military personnel stationed in Germany.“相当尴尬的局面”:驻德英国军人的患者、护理人员以及卫生和社会保健专业人员对支持性癌症护理的看法。
Support Care Cancer. 2009 Oct;17(10):1269-76. doi: 10.1007/s00520-009-0580-z. Epub 2009 Jan 27.