Jenkinson C, Fitzpatrick R
Picker Institute Europe, King's Mead House, Oxpens Road, Oxford OX1 1JX, UK.
J Neurol Neurosurg Psychiatry. 2001 Jan;70(1):70-3. doi: 10.1136/jnnp.70.1.70.
The 40 item amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40) is a subjective health measure designed specifically to assess areas of importance to patients with ALS. It was designed for use in surveys and clinical trials of this patient group, and has been assessed for reliability and validity. Despite its relative brevity there are situations where an even shorter form of the instrument would be desirable. Consequently, this paper reports a process of item reduction which results in a brief five item version of the instrument.
Data from two surveys of patients with ALS who completed the ALSAQ-40 were analysed to develop a short form ALSAQ. Questionnaire items were correlated with their dimension total scores. Highly correlated items were transformed onto a scale from 0 to 100 and results compared with the parent dimension.
Five items were selected that produced results that closely resembled those of the five dimension scores of the ALSAQ-40.
Results on the new measure compared with the parent ("gold standard") ALSAQ-40 suggest that the measure can produce similar results to the longer form but with considerable economy.
40项肌萎缩侧索硬化症评估问卷（ALSAQ - 40）是一种主观健康测评工具，专门用于评估对肌萎缩侧索硬化症患者重要的方面。它设计用于该患者群体的调查和临床试验，并已对其信度和效度进行了评估。尽管它相对简短，但在某些情况下，更简短的版本会更受欢迎。因此，本文报告了一个项目精简过程，最终形成了该问卷的简短五项版本。
对两项完成了ALSAQ - 40的肌萎缩侧索硬化症患者调查数据进行分析，以开发一个简短形式的ALSAQ。问卷项目与其维度总分进行相关性分析。高度相关的项目被转换为0至100的量表，并将结果与原始维度进行比较。
选择了五个项目，其产生的结果与ALSAQ - 40的五个维度得分非常相似。
与原始（“金标准”）ALSAQ - 40相比，新测评工具的结果表明，该测评工具能产生与较长版本相似的结果，但具有显著的经济性。
