Meyers A R, Andresen E M, Hagglund K J
Boston University School of Public Health, New England Regional Spinal Cord Injury Center, MA, USA.
Arch Phys Med Rehabil. 2000 Dec;81(12 Suppl 2):S81-90. doi: 10.1053/apmr.2000.20629.
To use spinal cord injury (SCI) care and research as a paradigm to illustrate how the principles and practices of outcomes research have been and can be applied to the sequelae of a specific disability.
Review of data sources and literature pertaining to outcomes of SCI.
English language literature, health status and health services research agencies, academic and governmental research, and surveillance settings.
A critical review of measures that have been and may be used to measure the outcomes of SCI. Special attention was paid to data sources; the need for methodologic accommodations: the research balance between generic and condition-specific methods; and the measurement outcomes that are highly relevant to people with SCIs.
There is a substantial research record related to the natural history, rehabilitation, survival, and long-term social reintegration of people with SCI, but relatively less addressing widely used generic health outcomes.
Contemporary outcomes research is relevant to people with SCI and those who provide treatment. One area of special attention is the occurrence of secondary conditions. To a large extent, SCI outcomes research can use conventional methods and generic instruments. There also is a need to modify research methods and to refine and apply some measures specific to people with SCI.
以脊髓损伤（SCI）护理与研究为范例，说明结局研究的原则与实践如何应用于特定残疾的后遗症，以及可以如何应用。
回顾与SCI结局相关的资料来源和文献。
英文文献、健康状况与健康服务研究机构、学术与政府研究以及监测机构。
对已用于和可能用于衡量SCI结局的措施进行批判性综述。特别关注资料来源；方法调整的必要性；通用方法与特定疾病方法之间的研究平衡；以及与SCI患者高度相关的测量结局。
有大量关于SCI患者自然病史、康复、生存及长期社会重新融入的研究记录，但针对广泛使用的通用健康结局的研究相对较少。
当代结局研究与SCI患者及提供治疗的人员相关。一个特别关注的领域是继发疾病的发生。在很大程度上，SCI结局研究可采用传统方法和通用工具。还需要修改研究方法，并完善和应用一些针对SCI患者的特定措施。
