Mirnics Z, Czikora G, Závecz T, Halász P
National Institute of Psychiatry and Neurology, Epilepsy Center, Budapest, Hungary.
Epilepsia. 2001 Jan;42(1):86-93. doi: 10.1046/j.1528-1157.2001.18000.x.
Our study investigated public attitudes toward epilepsy, and knowledge and understanding of epilepsy in Hungary. We compared changes of public attitudes in the last six years, hypothesizing a trend of positive changes because of recent national initiatives for acceptance and integration of people with epilepsy (e.g., participation of Hungary in the "Out of the Shadows" world campaign). We also studied how the demographic background of the respondents affects awareness, understanding, and attitudes toward epilepsy. Using a questionnaire design, we conducted a public opinion poll with a representative sample of 1,000 people in 1994 and 6 years later, in 2000. Hungarian respondents were most prejudiced regarding employment of people with epilepsy. In recent years, significant decreases in prejudice rates were found regarding all attitude aspects (marriage, children associating, work). Significant background effects of demographic variables were also apparent: differences by age, education, residence, and family status were found. Some culture-specific characteristics of understanding epilepsy could be observed. Significant positive attitude changes from 1994 to 2000 confirm the need for and potentialities of education of the public and informational initiatives. Demographic influences and culture-specific characteristics could be of relevance in designing public education for different target groups.
我们的研究调查了匈牙利公众对癫痫的态度以及对癫痫的认识和理解。我们比较了过去六年公众态度的变化,假设由于近期国家为接纳和融合癫痫患者所采取的举措(例如,匈牙利参与“走出阴影”全球运动),会出现积极变化的趋势。我们还研究了受访者的人口背景如何影响对癫痫的认识、理解和态度。通过问卷设计,我们在1994年对1000人的代表性样本进行了民意调查,并在6年后的2000年再次进行调查。匈牙利受访者在癫痫患者就业方面偏见最大。近年来,在所有态度方面(婚姻、与孩子交往、工作)的偏见率都有显著下降。人口变量的显著背景影响也很明显:发现了年龄、教育程度、居住地点和家庭状况方面的差异。可以观察到一些理解癫痫的特定文化特征。1994年至2000年期间显著的积极态度变化证实了对公众进行教育和开展宣传活动的必要性和潜力。人口影响和特定文化特征在为不同目标群体设计公共教育时可能具有相关性。