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芬兰公众对癫痫的认知与态度。

Public awareness and attitudes toward epilepsy in Finland.

作者信息

Iivanainen M, Uutela A, Vilkkumaa I

出版信息

Epilepsia. 1980 Aug;21(4):413-23. doi: 10.1111/j.1528-1157.1980.tb04089.x.

Abstract

Public awareness and attitudes toward epilepsy were surveyed in Finland. Three thousand names were randomly selected from the population registry in the age range of 15 to 64 years. Of the 2,789 persons contacted, 2,272 (81%) answered a questionnaire about epilepsy. The social background of the responsdents did not deviate significantly from that of the general population in this age range. The questionnaire consisted of 28 questions designed to determine the respondents' social background, acquaintance with epileptic persons, awareness of epilepsy, and opinions and attitudes about the disorder. Ninety-five percent of the respondents had heard of epilepsy, 49% knew an epileptic person, 45% had seen a seizure, 15% were familiar with the causes of epilepsy, 12% knew how to help a person having a generalized convulsive seizure, and 1% would leave their jobs if they had to work with an epileptic person. The attitudes toward children with epilepsy were more charitable than toward epileptic adults. The factors of knowing an epileptic person, education, and age had the greatest influence on awareness and knowledge of epilepsy and to a lesser extent, attitudes toward it. The level of knowledge of epilepsy was rather low, especially in younger age groups. The results appeared useful for the Attitude Formation Program of the Finnish League for Epilepsy. Those processes that govern the forming and changing of attitudes toward epilepsy in school or work should be traced. An information campaign will be continued, and the survey of public attitudes toward epilepsy will be renewed in the future.

摘要

在芬兰对公众对癫痫的认知和态度进行了调查。从年龄在15至64岁的人口登记册中随机抽取了3000个名字。在联系的2789人中,2272人(81%)回答了一份关于癫痫的问卷。受访者的社会背景与该年龄范围的普通人群没有显著差异。问卷由28个问题组成,旨在确定受访者的社会背景、与癫痫患者的相识情况、对癫痫的认知、以及对该疾病的看法和态度。95%的受访者听说过癫痫,49%认识癫痫患者,45%见过癫痫发作,15%了解癫痫的病因,12%知道如何帮助癫痫大发作的患者,1%表示如果必须与癫痫患者共事会辞职。对癫痫儿童的态度比对成年癫痫患者更宽容。认识癫痫患者、教育程度和年龄等因素对癫痫的认知和了解影响最大,对其态度的影响程度较小。癫痫的知识水平相当低,尤其是在较年轻的年龄组。这些结果对芬兰癫痫联盟的态度形成计划似乎很有用。应该追踪那些在学校或工作中影响对癫痫态度形成和改变的过程。将继续开展宣传活动,未来还会重新进行公众对癫痫态度的调查。

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