Woods S, Beaver K, Luker K
Institute of Medicine, Law and Bioethics, University of Manchester, Williamson Building, Oxford Road, Manchester M13 9PT, UK.
Nurs Ethics. 2000 Jul;7(4):314-26. doi: 10.1177/096973300000700405.
This article is based on the findings of a study that elicited the views of terminally ill patients (n = 15), their carers (n = 10) and bereaved carers (n = 19) on the palliative care services they received. It explores the range of ethical issues revealed by the data. Although the focus of the original study was on community services, the participants frequently commented on all aspects of their experience. They described some of its positive and negative aspects. Of concern was the reported lack of sensitivity to the role of the family among health professionals. The family, as carers, service users and advocates, represent a challenge to professional boundaries and the ethical norms of confidentiality and best interest. The accounts reveal the complexity of the ethical issues that characterize terminal care, issuing specific ethical challenges to nurses and other health professionals involved in this field.
本文基于一项研究的结果，该研究征集了晚期患者（n = 15）、他们的护理人员（n = 10）以及丧亲护理人员（n = 19）对他们所接受的姑息治疗服务的看法。它探讨了数据所揭示的一系列伦理问题。尽管原研究的重点是社区服务，但参与者经常对他们经历的各个方面发表评论。他们描述了其中的一些积极和消极方面。令人担忧的是，据报告卫生专业人员对家庭角色缺乏敏感性。家庭作为护理人员、服务使用者和倡导者，对专业界限以及保密和最大利益的伦理规范构成了挑战。这些叙述揭示了临终护理中伦理问题的复杂性，给该领域的护士和其他卫生专业人员带来了特定的伦理挑战。
