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本文引用的文献

1
Labour force participation among patients with rheumatoid arthritis.类风湿关节炎患者的劳动力参与情况。
Ann Rheum Dis. 2000 Jul;59(7):549-54. doi: 10.1136/ard.59.7.549.
2
Work disability in rheumatoid arthritis 10 years after the diagnosis.类风湿关节炎诊断10年后的工作残疾情况。
J Rheumatol. 1999 Aug;26(8):1681-5.
3
The longterm outcomes of rheumatoid arthritis: Work disability: a prospective 18 year study of 823 patients.类风湿关节炎的长期预后:工作残疾:一项对823例患者进行的为期18年的前瞻性研究。
J Rheumatol. 1998 Nov;25(11):2108-17.
4
National database of patients visiting rheumatologists in The Netherlands: the standard diagnosis register of rheumatic diseases. A report and preliminary analysis.荷兰风湿病患者全国数据库:风湿病标准诊断登记册。一份报告及初步分析。
Br J Rheumatol. 1998 May;37(5):555-61. doi: 10.1093/rheumatology/37.5.555.
5
The outcome of ankylosing spondylitis: a study of 100 patients.强直性脊柱炎的结局:一项对100例患者的研究。
Br J Rheumatol. 1997 Jul;36(7):766-71. doi: 10.1093/rheumatology/36.7.766.
6
Socioeconomic status in ankylosing spondylitis: relationship between occupation and disease activity.
J Rheumatol. 1997 May;24(5):908-11.
7
Labor and health status in economic evaluation of health care. The Health and Labor Questionnaire.医疗保健经济评估中的劳动与健康状况。《健康与劳动调查问卷》。
Int J Technol Assess Health Care. 1996 Summer;12(3):405-15. doi: 10.1017/s0266462300009764.
8
The costs of rheumatoid arthritis: absolute, incremental, and marginal estimates.类风湿性关节炎的成本:绝对、增量和边际估计。
J Rheumatol Suppl. 1996 Mar;44:47-51.
9
Clinical trial enrollers vs. nonenrollers: the Cardiac Arrhythmia Suppression Trial (CAST) Recruitment and Enrollment Assessment in Clinical Trials (REACT) project.临床试验入组者与未入组者:心律失常抑制试验(CAST)临床试验招募与入组评估(REACT)项目
Control Clin Trials. 1996 Feb;17(1):46-59. doi: 10.1016/0197-2456(95)00089-5.
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The underestimated long term medical and economic consequences of rheumatoid arthritis.类风湿关节炎被低估的长期医学和经济后果。
Drugs. 1995;50 Suppl 1:1-14. doi: 10.2165/00003495-199500501-00003.

强直性脊柱炎患者的就业、工作残疾及误工天数:一项针对荷兰患者的横断面研究

Employment, work disability, and work days lost in patients with ankylosing spondylitis: a cross sectional study of Dutch patients.

作者信息

Boonen A, Chorus A, Miedema H, van der Heijde D, van der Tempel H, van der Linden S

机构信息

Department of Rheumatology, University Hospital Maastricht, PO Box 5800, 6202 AZ Maastricht, The Netherlands.

出版信息

Ann Rheum Dis. 2001 Apr;60(4):353-8. doi: 10.1136/ard.60.4.353.

DOI:10.1136/ard.60.4.353
PMID:11247865
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1753602/
Abstract

OBJECTIVE

To evaluate employment status, work disability, and work days lost in patients with ankylosing spondylitis (AS).

METHODS

A questionnaire was sent to 709 patients with AS aged 16-60. The results of 658 of the patients could be analysed.

RESULTS

After adjustment for age, labour force participation was decreased by 15.4% in male patients and 5.2% in female patients compared with the general Dutch population. Work disability (all causes) was 15.7% and 16.9% higher than expected in the general population for male and female patients respectively. In particular, the proportion of those with a partial work disability pension was increased. Patients with a paid job lost 5.0% of work days as the result of having AS, accounting for a mean of 10.1 days of sick leave due to AS per patient per year in addition to the national average of 12.3 unspecified days of sick leave.

CONCLUSION

This study on work status in AS provides data adjusted for age and sex, and the differences from the reference population were significant. The impact of AS on employment and work disability is considerable. Work status in patients with AS needs more attention as an outcome measure in future research.

摘要

目的

评估强直性脊柱炎(AS)患者的就业状况、工作残疾情况及误工天数。

方法

向709例年龄在16至60岁的AS患者发放问卷。对658例患者的结果进行分析。

结果

在对年龄进行调整后,与荷兰普通人群相比,男性患者的劳动力参与率下降了15.4%,女性患者下降了5.2%。男性和女性患者因各种原因导致的工作残疾率分别比普通人群高出15.7%和16.9%。特别是,领取部分工作残疾抚恤金的比例有所增加。有带薪工作的患者因患AS损失了5.0%的工作日,除全国平均每年12.3天的未明确病因病假外,每位患者每年因AS平均病假10.1天。

结论

这项关于AS患者工作状况的研究提供了经年龄和性别调整的数据,与参照人群的差异显著。AS对就业和工作残疾的影响相当大。在未来研究中,AS患者的工作状况作为一项结果指标需要更多关注。