Huemer C, Ruperto N, Huemer M, Sailer-Hoeck M, Kaulfersch W, Schwarz R, Rettenbacher A, Kenzian H, Artacker G, Pilz I, Bernecker M, Huppertz H I, Landgraf J M
Universitätsklinik für Kinder- und Jugendheilkunde, Währinger Gürtel 18-20, A-1090 Wien, Austria.
Clin Exp Rheumatol. 2001 Jul-Aug;19(4 Suppl 23):S15-9.
We report herein the results of the cross-cultural adaptation and validation into the Austrian language of the parentís version of two health related quality of life instruments. The Childhood Health Assessment Questionnaire (CHAQ) is a disease specific health instrument that measures functional ability in daily living activities in children with juvenile idiopathic arthritis (JIA). The Child Health Questionnaire (CHQ) is a generic health instrument designed to capture the physical and psychosocial well-being of children independently from the underlying disease. The Austrian CHAQ CHQ were adapted from the German version of the CHAQ-CHQ, and revalidated in this study. A total of 134 subjects were enrolled: 74 patients with JIA (9.5% systemic onset, 42% polyarticular onset, 9.5% extended oligoarticular subtype, and 39% persistent oligoarticular subtype) and 60 healthy children. The CHAQ clinically discriminated between healthy subjects and JIA patients, with the systemic, polyarticular and extended oligoarticular subtypes having a higher degree of disability, pain, and a lower overall well-being when compared to their healthy peers. Also the CHQ clinically discriminated between healthy subjects and JIA patients, with the systemic onset, polyarticular onset and extended oligoarticular subtypes having a lower physical and psychosocial well-being when compared to their healthy peers. In conclusion the Austrian version of the CHAQ-CHQ is a reliable, and valid tool for the functional, physical and psychosocial assessment of children with JIA.
我们在此报告两种与健康相关的生活质量工具的家长版跨文化调适及奥地利语验证结果。儿童健康评估问卷（CHAQ）是一种针对特定疾病的健康工具，用于测量幼年特发性关节炎（JIA）患儿的日常生活活动功能能力。儿童健康问卷（CHQ）是一种通用健康工具，旨在独立于潜在疾病来获取儿童的身心健康状况。奥地利版的CHAQ-CHQ改编自德语版的CHAQ-CHQ，并在本研究中进行了再验证。共招募了134名受试者：74例JIA患者（9.5%为全身型起病，42%为多关节型起病，9.5%为扩展性少关节型亚型，39%为持续性少关节型亚型）和60名健康儿童。CHAQ在临床上能够区分健康受试者和JIA患者，全身型、多关节型和扩展性少关节型亚型与健康同龄人相比，残疾程度更高、疼痛更严重，总体幸福感更低。CHQ在临床上也能区分健康受试者和JIA患者，全身型起病、多关节型起病和扩展性少关节型亚型与健康同龄人相比，身心健康状况更低。总之，奥地利版的CHAQ-CHQ是评估JIA患儿功能、身体和心理社会状况的可靠且有效的工具。
