Machado C S, Ruperto N, Silva C H, Ferriani V P, Roscoe I, Campos L M, Oliveira S K, Kiss M H, Bica B E, Sztajnbok F, Len C A, Melo-Gomes J A
Faculdade de Medicina de Botucatu, UNESP, Departamento de Pediatria, 18618-970 Botucatu, São Paulo, Brazil.
Clin Exp Rheumatol. 2001 Jul-Aug;19(4 Suppl 23):S25-9.
We report the cross-cultural adaptation and validation into Brazilian-Portuguese of the parent's version of two health related quality of life instruments. The Childhood Health Assessment Questionnaire (CHAQ) is a disease specific health instrument that measures functional ability in daily living activities in children with juvenile idiopathic arthritis (JIA). The Child Health Questionnaire (CHQ) is a generic health instrument designed to capture the physical and psychosocial well-being of children regardless the underlying disease. The Brazilian CHAQ was revalidated, while the CHQ has been derived from the Portuguese version. A total of 471 subjects were enrolled: 157 patients with JIA (27% systemic onset, 38% polyarticular onset, 9% extended oligoarticular subtype, and 26% persistent oligoarticular subtype) and 314 healthy children. The CHAQ discriminated clinically healthy subjects from JIA patients, with the systemic, polyarticular and extended oligoarticular subtypes having a higher degree of disability, pain, and lower overall well-being scores when compared to their healthy peers. Also the CHQ discriminated clinically healthy subjects from JIA patients, with the systemic onset, polyarticular onset and extended oligoarticular subtypes having a lower physical and psychosocial well-being score when compared to their healthy peers. In conclusion the Brazilian versions of the CHAQ-CHQ are reliable and valid tools for the combined physical and psychosocial assessment of children with JIA.
我们报告了两种与健康相关的生活质量工具家长版的跨文化改编及巴西葡萄牙语验证情况。儿童健康评估问卷（CHAQ）是一种针对特定疾病的健康工具，用于测量幼年特发性关节炎（JIA）患儿日常生活活动中的功能能力。儿童健康问卷（CHQ）是一种通用健康工具，旨在获取儿童的身体和心理社会福祉，而不考虑潜在疾病。巴西版CHAQ进行了再验证，而CHQ是从葡萄牙语版本衍生而来。共纳入471名受试者：157例JIA患者（27%为全身型发病，38%为多关节型发病，9%为扩展性少关节型亚型，26%为持续性少关节型亚型）和314名健康儿童。CHAQ能够区分临床健康受试者和JIA患者，全身型、多关节型和扩展性少关节型亚型与健康同龄人相比，残疾程度更高、疼痛更严重，总体幸福感得分更低。CHQ同样能够区分临床健康受试者和JIA患者，全身型发病、多关节型发病和扩展性少关节型亚型与健康同龄人相比，身体和心理社会福祉得分更低。总之，巴西版的CHAQ-CHQ是用于综合评估JIA患儿身体和心理社会状况的可靠且有效的工具。
