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是否应该披露阿尔茨海默病的诊断结果?

Should a diagnosis of Alzheimer's disease be disclosed?

作者信息

Sullivan K, O'Conor F

机构信息

School of Psychology and Counselling, Queensland University of Technology, Carseldine, Australia.

出版信息

Aging Ment Health. 2001 Nov;5(4):340-8. doi: 10.1080/13607860120080297.

DOI:10.1080/13607860120080297
PMID:11767982
Abstract

There is evidence that some health practitioners may be reluctant to disclose a diagnosis of Alzheimer's disease (AD) to patients. However, this reluctance towards disclosure may not be in accordance with patient expectation. This study examined the attitudes of 100 undergraduate psychology students towards disclosure practices in relation to AD, before and after exposure to AD education. After AD education, 93% of participants indicated a desire to be informed of a diagnosis of AD, and 95% of participants were in favour of telling a close relative a diagnosis of AD. Results are discussed in terms of the relationship between age and attitudes towards AD diagnosis. It is concluded that the high rate of support for disclosure of AD diagnoses to patients among younger adults may reflect a change in the information preferences of patients brought about by a shift away from a patriarchal medical model, toward a more autonomous model of health.

摘要

有证据表明,一些医疗从业者可能不愿向患者透露阿尔茨海默病(AD)的诊断结果。然而,这种不愿透露的态度可能不符合患者的期望。本研究调查了100名本科心理学专业学生在接受AD教育前后对AD诊断结果披露做法的态度。接受AD教育后,93%的参与者表示希望被告知AD诊断结果,95%的参与者赞成将AD诊断结果告知近亲。根据年龄与对AD诊断态度之间的关系对结果进行了讨论。得出的结论是,年轻人中对向患者披露AD诊断结果的高支持率可能反映了患者信息偏好的变化,这种变化是由从家长式医疗模式向更自主的健康模式转变所带来的。

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