Davis Terry C, Williams Mark V, Marin Estela, Parker Ruth M, Glass Jonathan
Feist-Weiller Cancer Center, Louisiana State University Health Sciences Center, Shreveport, USA.
CA Cancer J Clin. 2002 May-Jun;52(3):134-49. doi: 10.3322/canjclin.52.3.134.
Health literacy is increasingly recognized as a critical factor affecting communication across the continuum of cancer care. We reviewed research on health literacy and examined its impact on cancer outcomes and communication. According to the National Adult Literacy Survey (NALS), considered the most accurate portrait of literacy in our society, about one in five American adults may lack the necessary literacy skills to function adequately in our society. As patients, such individuals are at a disadvantage in their capacity to obtain, process, and understand cancer information and services needed to make appropriate health care decisions. Patients with poor health literacy have a complex array of difficulties with written and oral communication that may limit their understanding of cancer screening and of symptoms of cancer, adversely affecting their stage at diagnosis. In addition, these barriers impair communication and discussion about risks and benefits of treatment options, and patient understanding of informed consent for routine procedures and clinical trials. More research is needed to identify successful methods for educating and communicating with patients who have limited health literacy. Based on our own experience, we offer practical communication aids that can help bridge the cancer communication gap.
健康素养日益被视为影响癌症全程护理沟通的关键因素。我们回顾了有关健康素养的研究,并考察了其对癌症治疗结果及沟通的影响。根据被认为是我国社会识字率最准确写照的《国家成人识字能力调查》,约五分之一的美国成年人可能缺乏在我国社会充分发挥作用所需的识字技能。作为患者,这些人在获取、处理和理解做出适当医疗保健决策所需的癌症信息及服务方面能力不足。健康素养低的患者在书面和口头沟通方面存在一系列复杂困难,这可能会限制他们对癌症筛查及癌症症状的理解,对其诊断阶段产生不利影响。此外,这些障碍会妨碍有关治疗方案风险和益处的沟通与讨论,以及患者对常规程序和临床试验知情同意的理解。需要开展更多研究,以确定针对健康素养有限的患者进行教育和沟通的成功方法。基于我们自己的经验,我们提供实用的沟通辅助工具,以帮助弥合癌症沟通差距。