Wimo Anders, von Strauss Eva, Nordberg Gunilla, Sassi Franco, Johansson Lennarth
HC Bergsjö, Box 16, S-820 70 Bergsjö, Sweden.
Health Policy. 2002 Sep;61(3):255-68. doi: 10.1016/s0168-8510(02)00010-6.
The purpose of this paper was to explore the time spent on caring by families of persons with dementia in Sweden. As part of a European Commission project, interviews were carried out on a sample of 92 carers, caring for persons with dementia. The interviews focused on time spent on caring, IADL, ADL and surveillance, as well as formal support received and used. Informal care, measured as hours spent caring, was about 8.5 times greater than formal services (299 and 35 h per month, respectively). Approximately 50% of the total informal care consisted of time spent on surveillance (day and night). Formal care input and informal support, in terms of ADL increased with dementia severity. A regression analysis showed that dementia severity, behavioural disturbances and coping were associated with the amount of informal care. This study gives some new perspectives on informal care giving for persons with dementia and support strategies in general. Some carers do carry a very heavy 24 h responsibility. This aspect of caring must be addressed by the development of well-targeted respite and relief support programmes.
本文旨在探讨瑞典痴呆症患者家庭的护理时长。作为欧盟委员会项目的一部分,对92名痴呆症患者的护理人员样本进行了访谈。访谈聚焦于护理时长、工具性日常生活活动能力(IADL)、日常生活活动能力(ADL)及监督,以及所接受和使用的正式支持。以护理时长衡量的非正式护理比正式服务多约8.5倍(分别为每月299小时和35小时)。约50%的非正式护理总时长用于监督(白天和晚上)。就ADL而言,正式护理投入和非正式支持随痴呆症严重程度增加。回归分析表明,痴呆症严重程度、行为障碍和应对方式与非正式护理量相关。本研究为痴呆症患者的非正式护理及总体支持策略提供了一些新视角。一些护理人员确实承担着非常繁重的24小时责任。必须通过制定针对性强的临时缓解和救济支持计划来解决护理的这一方面问题。