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视力相关的健康相关生活质量:养老院居民的内容领域

Vision-specific health-related quality of life: content areas for nursing home residents.

作者信息

Scilley Kay, Owsley Cynthia

机构信息

Department of Ophthalmology, University of Alabama, Birmingham 35294-0009, USA.

出版信息

Qual Life Res. 2002 Aug;11(5):449-62. doi: 10.1023/a:1015677501386.

Abstract

Nursing home residents have a high prevalence of remediable visual impairment and blindness. Future research on the effectiveness of providing eye care to nursing home residents will need to include a vision-targeted health-related quality of life (HRQOL) instrument appropriate for this population. The purpose of this study was to identify the core content areas for such an instrument. In-depth interviews on vision-related issues were conducted with 40 residents. Interviews were audio-taped, transcribed, and coded using a standardized protocol. Binocular distance and near visual acuity were assessed using the resident's 'walking around' correction to examine whether one vision-specific HRQOL measure could address the needs of residents with 'good' and 'poor' vision. Overall 1070 vision-related comments were identified. Residents mentioned 315 problem comments that were grouped into 13 categories, including ocular symptoms (18% of comments), reading (15%), general vision (13%), psychological distress (12%), and activities of daily living (ADLs) (7%). Compared to published data on vision-specific content areas most relevant to community based persons, nursing home residents focused more on ocular symptoms and basic ADLs, with no mention of issues related to driving, home care, and finances. The majority of categories mentioned did not differ on the proportion of comments made- by those with 'good' and 'poor' visual acuity, suggesting that one vision-specific HRQOL instrument would be appropriate for residents with varying levels of visual acuity. Future work will focus on developing a vision-specific HRQOL instrument for nursing home residents.

摘要

养老院居民中可矫正视力障碍和失明的患病率很高。未来关于为养老院居民提供眼部护理有效性的研究,需要纳入一种针对该人群的、以视力为目标的健康相关生活质量(HRQOL)工具。本研究的目的是确定此类工具的核心内容领域。对40名居民进行了关于视力相关问题的深入访谈。访谈进行了录音、转录,并使用标准化方案进行编码。使用居民的“走动”矫正来评估双眼远视力和近视力,以检查一种特定视力的HRQOL测量方法是否能满足视力“好”和“差”的居民的需求。总共识别出1070条与视力相关的评论。居民提到了315条问题评论,这些评论被归为13类,包括眼部症状(评论的18%)、阅读(15%)、一般视力(13%)、心理困扰(12%)和日常生活活动(ADLs)(7%)。与已发表的与社区居民最相关的特定视力内容领域的数据相比,养老院居民更关注眼部症状和基本的ADLs,没有提及与驾驶、家庭护理和财务相关的问题。大多数提到的类别在视力“好”和“差”的居民所做评论的比例上没有差异,这表明一种特定视力的HRQOL工具适用于不同视力水平的居民。未来的工作将集中于为养老院居民开发一种特定视力的HRQOL工具。

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