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让有缺陷的儿童出生的行为是否合理?

Are attempts to have impaired children justifiable?

作者信息

Anstey K W

机构信息

Centre for Applied Philosophy and Public Ethics, Department of Philosophy, The University of Melbourne, Parkville, Victoria, Australia 3010.

出版信息

J Med Ethics. 2002 Oct;28(5):286-8. doi: 10.1136/jme.28.5.286.

DOI:10.1136/jme.28.5.286
PMID:12356952
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1733653/
Abstract

In a recent case, artificial insemination was employed by a couple in an attempt to ensure the birth of a deaf child. In response to this, I argue that individuals should not be allowed to select for or against deafness. While I establish that preferences for deaf children can be inherently just, allowing individuals to secure these preferences may have unacceptable consequences for existing persons who are deaf. I show that these follow even granting this couple's contestable understanding of the deaf as a minority group.

摘要

在最近的一个案例中,一对夫妇采用人工授精的方式,试图确保生下一个失聪的孩子。对此,我认为不应允许个人选择生育失聪或不失聪的孩子。虽然我认为对失聪儿童的偏好本质上可能是合理的,但允许个人实现这些偏好可能会给现有的失聪者带来不可接受的后果。我表明,即便认可这对夫妇将失聪者视为少数群体这一有争议的观点,这些后果依然会出现。

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There is a difference between selecting a deaf embryo and deafening a hearing child.选择一个失聪胚胎和使一个听力正常的孩子失聪是有区别的。
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本文引用的文献

1
Sex selection and disability avoidance: is their opposed treatment conceptually consistent?性别选择与避免残疾:它们相反的对待方式在概念上是否一致?
Monash Bioeth Rev. 2002 Jan;21(1):10-28. doi: 10.1007/BF03351264.
2
Procreative beneficence: why we should select the best children.生殖善行:为何我们应该挑选最优的孩子。
Bioethics. 2001 Oct;15(5-6):413-26. doi: 10.1111/1467-8519.00251.
3
Do deaf people see better? Texture segmentation and visual search compensate in adult but not in juvenile subjects.聋人视觉更好吗?纹理分割和视觉搜索在成年人中起到了补偿作用,但在青少年中并非如此。
J Cogn Neurosci. 1999 Sep;11(5):560-83. doi: 10.1162/089892999563616.
4
Models of disablement, universalism and the international classification of impairments, disabilities and handicaps.残疾模型、普遍主义与《国际损伤、残疾和残障分类》
Soc Sci Med. 1999 May;48(9):1173-87. doi: 10.1016/s0277-9536(98)00441-9.
5
Deaf culture, cochlear implants, and elective disability.聋人文化、人工耳蜗与选择性残疾
Hastings Cent Rep. 1998 Jul-Aug;28(4):6-14.
6
Genetic dilemmas and the child's right to an open future.遗传困境与儿童拥有开放未来的权利。
Hastings Cent Rep. 1997 Mar-Apr;27(2):7-15.