[Attitudes of health centre users to diagnoses of terminal illness].

OBJECTIVE

To calculate the prevalence of users who want to know their diagnosis of terminal illness and to analyse the factors determining their decision.

DESIGN

Descriptive, observational, cross-sectional study.

SETTING

Six lists belonging to two Health Districts in Asturias Health Area III.

PARTICIPANTS

On-demand users of the clinic, over 17 years old, selected by systematic randomized sampling stratified according to the number of consultations at the centre.

MAIN MEASUREMENTS AND RESULTS

Through a questionnaire composed by the researchers and face-to-face interviews, social and personal variables and attitudes to a diagnosis of terminal illness were collected. The sample consisted of 388 people. A descriptive analysis and population calculations were made, with a logistical regression analysis to identify associated variables.

RESULTS

70.6% of those questioned (95% CI, 66%-75.1%) wanted to know their diagnosis, mainly on the basis of their right to the information (35.1%; 95% CI, 29%-40.6%). Most of these wanted to be informed by the doctor (81.9%; CI, 77.5%-86.5%). The variables significantly linked to a positive reply were: male (OR, 1.91; CI, 1.1%-3.4%), age (OR, 0.97; CI, 0.95%-0.99%), religious beliefs (OR, 0.2; CI, 0.1%-0.8% for believers), fear of pain and disability (OR, 3.8; CI, 1.2%-12%), and having previously thought about wanting to be informed (OR, 2.2; CI, 1.2%-4%). This last variable achieved the highest partial correlation coefficient (R, 0.12).

CONCLUSIONS

Most users want to be informed of a diagnosis of terminal illness. The profile of the patient who wants to know the truth is: young male, non-believer, and someone whose main fears of terminal illness are pain and disability. The variable with most influence on the positive reply was having posed the question previously.