Fernández Suárez A, Fernández Alvarez T, Alonso Arruquero C, Marcilla Escotet M, Cortina Viesca A, Conde Rodríguez M, Rubio Domínguez J
Centro de Salud La Magdalena-Carriona, Area III del INSALUD, Avilés, Asturias, España.
Aten Primaria. 2002 Oct 31;30(7):449-54. doi: 10.1016/s0212-6567(02)79070-7.
To calculate the prevalence of users who want to know their diagnosis of terminal illness and to analyse the factors determining their decision.
Descriptive, observational, cross-sectional study.
Six lists belonging to two Health Districts in Asturias Health Area III.
On-demand users of the clinic, over 17 years old, selected by systematic randomized sampling stratified according to the number of consultations at the centre.
Through a questionnaire composed by the researchers and face-to-face interviews, social and personal variables and attitudes to a diagnosis of terminal illness were collected. The sample consisted of 388 people. A descriptive analysis and population calculations were made, with a logistical regression analysis to identify associated variables.
70.6% of those questioned (95% CI, 66%-75.1%) wanted to know their diagnosis, mainly on the basis of their right to the information (35.1%; 95% CI, 29%-40.6%). Most of these wanted to be informed by the doctor (81.9%; CI, 77.5%-86.5%). The variables significantly linked to a positive reply were: male (OR, 1.91; CI, 1.1%-3.4%), age (OR, 0.97; CI, 0.95%-0.99%), religious beliefs (OR, 0.2; CI, 0.1%-0.8% for believers), fear of pain and disability (OR, 3.8; CI, 1.2%-12%), and having previously thought about wanting to be informed (OR, 2.2; CI, 1.2%-4%). This last variable achieved the highest partial correlation coefficient (R, 0.12).
Most users want to be informed of a diagnosis of terminal illness. The profile of the patient who wants to know the truth is: young male, non-believer, and someone whose main fears of terminal illness are pain and disability. The variable with most influence on the positive reply was having posed the question previously.
计算希望了解其绝症诊断结果的用户比例，并分析决定其这一决定的因素。
描述性、观察性横断面研究。
阿斯图里亚斯健康区III两个健康区的六份名单。
诊所的按需就诊用户，年龄超过17岁，通过系统随机抽样选取，并根据在该中心的就诊次数进行分层。
通过研究人员编制的问卷和面对面访谈，收集了社会和个人变量以及对绝症诊断的态度。样本包括388人。进行了描述性分析和总体计算，并通过逻辑回归分析来识别相关变量。
70.6%的受访者（95%置信区间，66%-75.1%）希望了解其诊断结果，主要基于其知情权（35.1%；95%置信区间，29%-40.6%）。其中大多数希望由医生告知（81.9%；置信区间，77.5%-86.5%）。与肯定答复显著相关的变量有：男性（比值比，1.91；置信区间，1.1%-3.4%）、年龄（比值比，0.97；置信区间，0.95%-0.99%）、宗教信仰（信徒的比值比，0.2；置信区间，0.1%-0.8%）、对疼痛和残疾的恐惧（比值比，3.8；置信区间，1.2%-12%），以及之前曾考虑过希望得到告知（比值比，2.2；置信区间，1.2%-4%）。最后一个变量的偏相关系数最高（R，0.12）。
大多数用户希望了解绝症诊断结果。希望了解真相的患者特征为：年轻男性、无宗教信仰者，且主要恐惧绝症带来的疼痛和残疾。对肯定答复影响最大的变量是之前曾提出过该问题。
