绝症患者的知情权。
The right to information for the terminally ill patient.
作者信息
Osuna E, Pérez-Cárceles M D, Esteban M A, Luna A
机构信息
Department of Legal Medicine, School of Medicine, University of Murcia, Spain.
出版信息
J Med Ethics. 1998 Apr;24(2):106-9. doi: 10.1136/jme.24.2.106.
OBJECTIVES
To analyse the attitudes of medical personnel towards terminally ill patients and their right to be fully informed.
DESIGN
Self-administered questionnaire composed of 56 closed questions.
SETTING
Three general hospitals and eleven health centres in Granada (Spain). The sample comprised 168 doctors and 207 nurses.
RESULTS
A high percentage of medical personnel (24.1%) do not think that informing the terminally ill would help them face their illness with greater serenity. Eighty-four per cent think the patient's own home is the best place to die: 8.9% of the subjects questioned state that the would not like to be informed of an incurable illness.
CONCLUSION
In our opinion any information given should depend on the patient's personality, the stage of the illness and family circumstances. Our study confirms that a hospital is not the ideal environment for attending to the needs of the terminally ill and their families.
目的
分析医务人员对绝症患者的态度以及患者获得充分知情权的情况。
设计
由56个封闭式问题组成的自填式问卷。
地点
西班牙格拉纳达的三家综合医院和十一家健康中心。样本包括168名医生和207名护士。
结果
很大比例的医务人员（24.1%）认为告知绝症患者病情无助于他们更平静地面对疾病。84%的人认为患者自己的家是最佳的离世地点；8.9%的受访者表示他们不想得知自己身患绝症。
结论
我们认为，提供的任何信息都应取决于患者的个性、疾病阶段和家庭情况。我们的研究证实，医院并非满足绝症患者及其家人需求的理想环境。
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