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[眼科生活质量评估]

[Evaluation of the quality of life in ophthalmology].

作者信息

Brémond-Gignac D, Tixier J, Missotten T, Laroche L, Beresniak A

机构信息

Service d'ophtalmologie Hôpital Robert Debré 48, bd Sérurier 75019 Paris.

出版信息

Presse Med. 2002 Oct 19;31(34):1607-12.

Abstract

THE IMPORTANCE OF VISUAL FUNCTION IN THE ASSESSMENT OF QUALITY OF LIFE

The notion of visual function is related to visual acuity but also to many other parameters such as the visual field, perception of colour, contrasts, and the resistance to blinding. These factors are difficult to measure during routine ophthalmic examination but can be assessed during questionnaires on quality of life. MARKERS OF QUALITY OF LIFE IN OPHTHALMOLOGY: Various quality of life questionnaires have been developed in ophthalmology because the non-specific generic instruments appear inadequate. The SF 36 and SF 20 scales, which are generic instruments widely used in many fields, do not adequately explore the problems related to vision. The first efficient instrument is the VF 14, which is a questionnaire specific to ophthalmic diseases, developed by C. Mangione in 1992. This self-administered questionnaire permits calculation of a 0 to 100 score exploring 5 dimensions (long-sight acuity, near-sight acuity, unclear sight, and driving during the day and at night) during 14 activities with 18 questions. It was translated and adapted into French by Gresset in 1997. Today it is the most commonly used questionnaire in ophthalmology, particularly in the assessment of efficacy and impact in surgery. Along the other specific questionnaires developed, there is the NEI-VQF which was created in 1995 to assess vision and the impact of visual problems on the quality of life of patients, independently of an ophthalmic pathology. Many studies have been conducted on various diseases that affect vision, such as diabetes or hypertension. THE LIMITS OF EXISTING INSTRUMENTS: The specific scales appear far more sensitive and specific than generic scales with regard to ophthalmic problems, but they provide less information on the general status of the patient, except for the NEI-VQF. They are limited in some parameters and do not, unfortunately, take into account the patient's age. No specific scale has been developed for children or adolescents, although the impact of vision on daily life is fundamental. The complexity of vision means that the elaboration of an ideal instrument is difficult. However, in the meantime, it is essential that the practitioners continue to use and to test the instruments available in order to improve with regard to pathologies, or in particular sub-groups of the population.

摘要

视觉功能在生活质量评估中的重要性

视觉功能的概念不仅与视力有关,还与许多其他参数相关,如视野、颜色感知、对比度以及抗盲能力。这些因素在常规眼科检查中难以测量,但可在生活质量问卷中进行评估。

眼科生活质量的指标

由于非特异性通用工具似乎不够充分,眼科领域已开发了各种生活质量问卷。SF 36和SF 20量表是在许多领域广泛使用的通用工具,但它们并未充分探究与视力相关的问题。首个有效的工具是VF 14,它是由C. Mangione于1992年开发的针对眼科疾病的问卷。这份自填式问卷允许通过18个问题在14项活动中计算出0至100分,以探究5个维度(远视力、近视力、视力模糊以及白天和夜间驾驶)。它于1997年由格雷塞翻译并改编成法语。如今它是眼科中最常用的问卷,尤其在评估手术疗效和影响方面。在其他已开发的特定问卷中,有1995年创建的NEI - VQF,用于评估视力以及视觉问题对患者生活质量的影响,而不考虑眼科病理情况。针对许多影响视力的疾病,如糖尿病或高血压,已经开展了许多研究。

现有工具的局限性

特定量表在眼科问题方面似乎比通用量表更敏感和特异,但除了NEI - VQF外,它们提供的关于患者总体状况的信息较少。它们在某些参数方面存在局限性,而且遗憾的是没有考虑患者的年龄。尽管视力对日常生活的影响至关重要,但尚未为儿童或青少年开发特定量表。视觉的复杂性意味着难以制定出理想的工具。然而,与此同时,从业者必须继续使用和测试现有的工具,以便在疾病或特定人群亚组方面加以改进。

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