von Essen Louise, Enskär Karin, Haglund Kristina, Hedström Mariann, Skolin Inger
Department of Public Health and Caring Sciences, Section of Caring Science, Uppsala University, Uppsala Science Park, Dag Hammarskjölds väg 10B, S-751 83 Uppsala, Sweden.
Support Care Cancer. 2002 Nov;10(8):601-12. doi: 10.1007/s00520-002-0383-y. Epub 2002 Aug 24.
Aspects of care and assistance that are important for children aged 0-7 years who are being treated for cancer were examined. Parents ( N=57) and nurses ( N=59) were asked: "What caring aspects are important in ensuring that your child/the child feels cared for?" and "What help, if any, does your child/the child need outside the hospital?". Data were analysed by content analysis. The following aspects of care were identified: amusement, clinical competence, continuity, emotional support, family participation, honest communication, information, participation in decision making, satisfaction of basic needs, social competence, the parents are well cared for, and time. Parents most frequently mentioned social competence and amusement, while nurses most frequently mentioned continuity and information. The following aspects of assistance were identified: accessible care, amusement, emotional support, family life, meeting friends, normal life, practical support, rehabilitation and school support. At least a third of the children did not need any assistance, according to parents and nurses. Parents most frequently mentioned family life, meeting friends and practical support. Nurses most frequently mentioned normal life and family life. Taken together, the results indicate that not only a family but many more people need to be involved to help children with cancer to be cured not only in a biological but also a psychosocial sense.
对正在接受癌症治疗的0至7岁儿童而言，护理与协助的各个方面得到了审视。研究询问了57名家长和59名护士：“在确保您的孩子/患儿感受到关怀方面，哪些护理方面是重要的？”以及“您的孩子/患儿在院外需要哪些帮助（如有）？”。数据通过内容分析法进行分析。确定了以下护理方面：娱乐、临床能力、连贯性、情感支持、家庭参与、坦诚沟通、信息、参与决策、基本需求的满足、社交能力、家长得到良好照料以及时间。家长最常提及社交能力和娱乐，而护士最常提及连贯性和信息。确定了以下协助方面：可及的护理、娱乐、情感支持、家庭生活、会见朋友、正常生活、实际支持、康复和学校支持。根据家长和护士的说法，至少三分之一的儿童不需要任何协助。家长最常提及家庭生活、会见朋友和实际支持。护士最常提及正常生活和家庭生活。综合来看，结果表明，不仅家庭，而且更多人需要参与进来，以帮助患癌儿童不仅在生物学意义上，而且在心理社会意义上得到治愈。
