von Essen Louise, Enskär K
Department of Public Health and Caring Sciences, Sectionm of Caring Sciences, Uppsala University, Uppsala Science Park, Dag Hammerskjölds vag 10B, S-751 83 Uppsala, Sweden.
Cancer Nurs. 2003 Jun;26(3):203-10. doi: 10.1097/00002820-200306000-00005.
Aspects of care and assistance important for siblings of children treated for cancer were examined. Parents (n = 97) and nurses (n = 105) were asked: "What aspects of care are important for the siblings to feel cared for?" and "What help, if any, do the siblings need outside the hospital?" Data were analyzed by content analysis. The following care aspects were identified: amusement, emotional support, family life, information, normal life, participation, social competence, and time. Most parent and nurse answers were categorized as participation, information, and social competence. Parents more frequently than nurses (chi2 = 6.1; df = 1; P =.05) mentioned answers categorized as information and nurses more often than parents (chi2 = 12.3; df = 1; P =.001) mentioned that they did not know about any important care aspects. The following assistance aspects were identified: emotional support, fair attention, family life, normal life, practical support, and school support. Most parent and nurse answers were categorized as emotional support, fair attention, and family life. Parents more often than nurses (chi2 = 7.9; df = 1, P =.01) mentioned answers categorized as practical support and siblings not needing any assistance (chi2 = 8.3; df = 1; P =.05). Nurses more frequently than parents (chi2 = 25.1; df = 1; P =.001) mentioned that they did not know about any important aspects of assistance. Parents and nurses agree fairly well on what aspects of care and assistance are important for siblings of children with cancer.
研究了对患癌儿童接受治疗期间其兄弟姐妹而言重要的护理和帮助方面。研究询问了97位家长和105位护士：“对于兄弟姐妹而言，哪些护理方面对他们感到被关怀很重要？”以及“兄弟姐妹在院外需要哪些帮助（若有）？”通过内容分析法对数据进行了分析。确定了以下护理方面：娱乐、情感支持、家庭生活、信息、正常生活、参与、社交能力和时间。大多数家长和护士的回答被归类为参与、信息和社交能力。家长比护士更频繁地（卡方值=6.1；自由度=1；P=0.05）提及被归类为信息的回答，而护士比家长更频繁地（卡方值=12.3；自由度=1；P=0.001）表示他们不知道任何重要的护理方面。确定了以下帮助方面：情感支持、公平关注、家庭生活、正常生活、实际支持和学校支持。大多数家长和护士的回答被归类为情感支持、公平关注和家庭生活。家长比护士更频繁地（卡方值=7.9；自由度=1，P=0.01）提及被归类为实际支持的回答以及兄弟姐妹不需要任何帮助的回答（卡方值=8.3；自由度=1；P=0.如果您还有其他需求，请随时告诉我。05）。护士比家长更频繁地（卡方值=25.1；自由度=1；P=0.001）表示他们不知道任何重要的帮助方面。家长和护士在对患癌儿童的兄弟姐妹而言哪些护理和帮助方面很重要这一问题上意见相当一致。
