Cimino James J, Patel Vimla L, Kushniruk Andre W
Department of Medical Informatics, Columbia University, 622 West 168th Street, VC-5, New York, NY 10032, USA.
Int J Med Inform. 2002 Dec 18;68(1-3):113-27. doi: 10.1016/s1386-5056(02)00070-9.
As health records evolve into electronic form, increasing demand is being made to provide patients with access to them. We sought to study the character and impact of such access to determine how patients use such records, what cognitive effects it has on them, and how it affects their relationship with their health care providers. We created the Patient Clinical Information System (PatCIS) to interface with the clinical data repository at New York Presbyterian Hospital (NYPH) to allow patients to add to and review their medical data. We also provided educational resources and automated advice programs. We provided access to the system to thirteen subjects over a 36-month period and reviewed their activities in the system's usage log. We also collected data via questionnaire and telephone interview. We collected data for a total of 223 patient months. We found that patients varied in their use of the system, from once a month or less to one or more times per day. All patients primarily used the system to review laboratory results. Both they and their physicians believed that use of the system enhanced the patients' understanding of their conditions and improved their communication with their physicians. There were no adverse events encountered during the study.
随着健康记录向电子形式发展，人们对为患者提供访问这些记录的需求日益增加。我们试图研究这种访问的特点和影响，以确定患者如何使用这些记录，它对患者有哪些认知影响，以及它如何影响患者与医疗服务提供者的关系。我们创建了患者临床信息系统（PatCIS），使其与纽约长老会医院（NYPH）的临床数据存储库对接，以便患者添加和查看自己的医疗数据。我们还提供了教育资源和自动建议程序。在36个月的时间里，我们让13名受试者使用该系统，并查看了系统使用日志中的活动记录。我们还通过问卷调查和电话访谈收集数据。我们总共收集了223个患者月的数据。我们发现，患者使用系统的频率各不相同，从每月一次或更少到每天一次或多次。所有患者主要使用该系统查看实验室检查结果。患者及其医生都认为，使用该系统增强了患者对自身病情的理解，并改善了他们与医生的沟通。研究期间未出现不良事件。
