Jessen E C, Colver A F, Mackie P C, Jarvis S N
Northumberland Care Trust, Child Health Office, The Bondgate Surgery, Alnwick, Northumberland, UK.
Child Care Health Dev. 2003 Jan;29(1):21-34. doi: 10.1046/j.1365-2214.2003.00312.x.
Information on registers of children with special needs will be more meaningful if a validated measure of the severity of impact of a child's disability on life and family is included.
We describe the development and initial validation of a parent-completed questionnaire (Generic Lifestyle Assessment Questionnaire LAQ-G) aimed at measuring such impact.
Data were collected on 95 case children, representing various disabilities, and 65 control children without disability, and analysed for case-control, test-re-test and inter-reporter reliability. Multidimensional scaling techniques were then used to derive six domains, representing impact of disability in a structure analogous to the participation domains of the revised International Classification ICF (WHO 2001).
Initial results suggest that the LAQ-G is a reliable measure of the impact of disability for children with a range of common disabling conditions.
如果纳入一项经过验证的衡量儿童残疾对生活和家庭影响严重程度的指标，那么有关特殊需求儿童登记册的信息将更有意义。
我们描述了一份由家长填写的问卷（通用生活方式评估问卷LAQ-G）的编制及初步验证过程，该问卷旨在衡量此类影响。
收集了95名患有各种残疾的病例儿童以及65名无残疾对照儿童的数据，并对其进行病例对照、重测和不同报告者之间的信度分析。然后使用多维标度技术得出六个领域，这些领域所代表的残疾影响在结构上类似于修订后的国际功能、残疾和健康分类（ICF，世界卫生组织，2001年）中的参与领域。
初步结果表明，LAQ-G是衡量一系列常见残疾状况儿童残疾影响的可靠指标。
