Isaksen Astrid Steen, Thuen Frode, Hanestad Berit
Faculty of Health and Social Services, Bergen College, Norway.
Cancer Nurs. 2003 Feb;26(1):68-74. doi: 10.1097/00002820-200302000-00010.
This article presents findings from a study of 536 patients with cancer and 473 of their close relatives from 15 different hospitals in Norway. The study assessed the satisfaction of both groups with the help and support they received from different sources such as family and friends, health personnel, and fellow patients. The results indicate that the patients received more support and information than their close relatives. The patients also were generally more satisfied with the support. Furthermore, the relatives seemed to underestimate the help and support provided to the patients. For both the patients and their close relatives, family and friends proved to be important sources of support. Regarding the public health services, almost 90% of the patients were very satisfied with the medical treatment. On the other hand, only an approximate 13% were very satisfied with information about alternative treatment and financial issues related to the disease. For the patients, the contact with fellow patients was highly valued. For most of the patients, this contact provided hope for the future, but it also had the potential for painful and sad feelings. The study was conducted in collaboration with the Norwegian Cancer Society to provide information that can be used for the guidance of health personnel and care of patients and their relatives.
本文介绍了一项针对挪威15家不同医院的536名癌症患者及其473名近亲的研究结果。该研究在家庭和朋友、医护人员以及病友等不同来源提供的帮助和支持下，评估了两组人群的满意度。结果表明，患者比其近亲获得了更多的支持和信息。患者对所获支持总体上也更为满意。此外，亲属似乎低估了向患者提供的帮助和支持。对于患者及其近亲而言，家人和朋友被证明是重要的支持来源。关于公共卫生服务，近90%的患者对医疗治疗非常满意。另一方面，只有约13%的患者对有关替代治疗以及与疾病相关的财务问题的信息非常满意。对于患者来说，与病友的交流非常重要。对于大多数患者而言，这种交流为未来带来了希望，但也可能引发痛苦和悲伤的情绪。该研究是与挪威癌症协会合作开展的，旨在提供可用于指导医护人员以及照顾患者及其亲属的信息。
