Hosain G M Monawar, Atkinson David, Underwood Peter
Community Health Research and Training Unit, University of Western Australia, 324 Striling Highway, Claremont, WA 6010.
J Health Popul Nutr. 2002 Dec;20(4):297-305.
This study examined the impact of disability on the quality of life of disabled people in rural Bangladesh. A primary healthcare specialist conducted a door-to-door survey in two villages in Bangladesh to collect socioeconomic and demographic information on the villagers and for identification of disabled people. Information on disability and how it affected their life was also obtained either from the disabled people or from their caregivers by interviewing them. The study revealed that disability had a devastating effect on the quality of life of the disabled people with a particularly negative effect on their marriage, educational attainment, employment, and emotional state. Disability also jeopardized their personal, family and social life. More than half of the disabled people were looked at negatively by society. Disabled women and girl children suffered more from negative attitudes than their male counterparts, resulting in critical adverse effects on their psychological and social health. A combination of educational, economic and intensive rehabilitative measures should be implemented urgently to make them self-reliant. Collaborative communication between professionals and parents, behavioural counselling, formation of a self-help group, and comprehensive support to families will reduce their suffering.
本研究调查了残疾对孟加拉国农村残疾人生活质量的影响。一名初级医疗保健专家在孟加拉国的两个村庄进行了挨家挨户的调查，以收集村民的社会经济和人口信息，并识别残疾人。关于残疾及其如何影响他们生活的信息，也是通过采访残疾人或其照顾者获得的。研究表明，残疾对残疾人的生活质量产生了毁灭性影响，对他们的婚姻、教育程度、就业和情绪状态产生了特别负面的影响。残疾还危及他们的个人、家庭和社会生活。超过一半的残疾人受到社会的负面看待。残疾妇女和女童比男性残疾人遭受更多的负面态度，这对她们的心理和社会健康产生了严重的不利影响。应紧急实施教育、经济和强化康复措施的组合，以使他们能够自力更生。专业人员与家长之间的协作沟通、行为咨询、自助团体的形成以及对家庭的全面支持将减轻他们的痛苦。
