脑性瘫痪青少年生活质量问卷：孟加拉 CPQoL-青少年版的心理测量特性。
A quality of life questionnaire for adolescents with cerebral palsy: psychometric properties of the Bengali CPQoL-teens.
机构信息
Discipline of Child and Adolescent Health, Faculty of Medicine and Health, University of Sydney, Sydney, NSW, Australia.
Asian Institute of Disability and Development, University of South Asia, Dhaka, Bangladesh.
出版信息
Health Qual Life Outcomes. 2019 Aug 2;17(1):135. doi: 10.1186/s12955-019-1206-x.
BACKGROUND
Quality of life (QoL) and health-related quality of life (HRQoL) measurement in low and middle-income countries of people with cerebral palsy (CP), the major cause of childhood physical disability, is essential to assess the impact of interventions and inform policies that best improve people's lives. The purpose of this study was to cross-culturally translate and psychometrically validate the Cerebral Palsy Quality of Life-Teens (CPQoL-Teens) self- and proxy-report questionnaires for application with adolescents with CP in Bangladesh.
METHOD
The CPQoL-Teens questionnaires were translated to Bengali using forward and backwards cross-cultural translation protocols. The questionnaires were interviewer administered to adolescents and their primary caregivers, identified through the Bangladesh Cerebral Palsy Register. Feasibility, sensitivity, internal consistency, content, concurrent and construct validity were assessed.
RESULTS
One hundred fifty four adolescents with CP (10 to 18y; mean 15y 1mo SD 1y 8mo; 31.2% female) participated. Feasibility, sensitivity and internal consistency of both self- and proxy-report questionnaires was excellent; nil missing scores except 'school wellbeing' which was associated with non-school attendance (48.4 to 74.7%); floor and ceiling effect ≤13.6%; Cronbach's alpha 0.77 to 0.94. Instrument validity was good; confirmatory factor analysis reflected five of the seven original instrument dimensions. CPQoL-Teens correlated to Kidscreen-27 on most dimensions (r = 0.176 to 0.693, p < 0.05); minimal difference in known groups was observed by mental health status (p < 0.05) although could be accounted for by homogeneity of mental health problems in the sample.
CONCLUSION
The CPQoL-Teens self- and proxy report questionnaires successfully translated to Bengali and showed excellent feasibility and strong psychometric properties confirming suitability to assess indicators of HRQoL among adolescents with CP in Bangladesh.
背景
生活质量（QoL）和健康相关生活质量（HRQoL）测量在中低收入国家的脑瘫（CP）患者中至关重要，这是评估干预措施影响和为改善人们生活而制定最佳政策的基础。本研究的目的是跨文化翻译脑瘫患者生活质量青少年版（CPQoL-Teens）自评和代评问卷，并对其进行心理测量学验证，以应用于孟加拉国的青少年 CP 患者。
方法
采用正向和反向跨文化翻译方案将 CPQoL-Teens 问卷翻译成孟加拉语。通过孟加拉脑瘫登记处，对青少年及其主要照顾者进行访谈式问卷调查。评估可行性、敏感性、内部一致性、内容、同时和结构有效性。
结果
共有 154 名 CP 青少年（10-18 岁；平均年龄 15 岁 1 个月标准差 1 岁 8 个月；31.2%为女性）参与了研究。自评和代评问卷的可行性、敏感性和内部一致性均极佳；除了“学校幸福感”，其余无缺失值（与非在校就读相关，占 48.4%至 74.7%）；地板和天花板效应≤13.6%；克朗巴赫的α值为 0.77 至 0.94。量表有效性良好；验证性因子分析反映了原始工具的七个维度中的五个维度。CPQoL-Teens 与 Kidscreen-27 大部分维度相关（r=0.176 至 0.693，p<0.05）；心理健康状况的已知组间差异最小（p<0.05），但可以通过样本中心理健康问题的同质性来解释。
结论
CPQoL-Teens 自评和代评问卷成功翻译成孟加拉语，具有极好的可行性和较强的心理测量学特性，证实其适用于评估孟加拉国 CP 青少年的 HRQoL 指标。
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