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“逐渐适应”:孩子们在癌症的不确定背景中寻找平凡与日常

"Getting used to it": children finding the ordinary and routine in the uncertain context of cancer.

作者信息

Stewart Janet L

机构信息

University of North Carolina School of Nursing, CB# 7460, Chapel Hill, NC 27599, USA.

出版信息

Qual Health Res. 2003 Mar;13(3):394-407. doi: 10.1177/1049732302250336.

Abstract

Uncertainty has been described as one of the major stressors faced by children with cancer and their families. However, ill children's responses to uncertainty have not been systematically studied. This grounded theory study of 11 children undergoing treatment for cancer confirmed that children experience multiple uncertainties in the context of cancer diagnosis and treatment. For the most part, however, children did not characterize themselves as feeling uncertain. Instead, they quickly came to view their lives as routine and ordinary despite the unpredictable nature of their illness course. Children described a process of getting used to cancer that allowed them to keep their focus on the ordinary nature of their everyday lives within the uncertain context of their illness. This interplay between uncertainty and routine provides important insight into children's psychological adjustment to life-threatening illness.

摘要

不确定性被描述为患有癌症的儿童及其家庭所面临的主要压力源之一。然而,患病儿童对不确定性的反应尚未得到系统研究。这项对11名正在接受癌症治疗的儿童进行的扎根理论研究证实,儿童在癌症诊断和治疗过程中会经历多种不确定性。然而,在大多数情况下,儿童并不认为自己感到不确定。相反,尽管他们的病程不可预测,但他们很快就开始将自己的生活视为常规和普通的。儿童描述了一个适应癌症的过程,这使他们能够在疾病的不确定背景下,将注意力集中在日常生活的平凡本质上。不确定性与常规之间的这种相互作用为儿童对危及生命疾病的心理调适提供了重要见解。

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