Skinner T C, Howells L, Greene S, Edgar K, McEvilly A, Johansson A
University Hospital Leicester, Leicester, Dundee, UK.
Diabet Med. 2003 Apr;20(4):283-9. doi: 10.1046/j.1464-5491.2003.00923.x.
This article reports on the development and validity of a Diabetes-specific Illness Representations Questionnaire (DIRQ) to assess all five dimensions of an individual's perception of diabetes, for adolescents with Type 1 diabetes mellitus.
There were two development studies. Study 1: participants (n = 115) completed a questionnaire assessing perceptions of the consequences of diabetes and the effectiveness of treatment, along with a questionnaire assessing self-care. Study 2: participants (n = 79) completed a questionnaire assessing their identity, timeline and causal beliefs, along with a diabetes self-efficacy and barriers to adherence questionnaire. Subsequently there were two validation studies. Study 3: participants (n = 44 adolescents and 28 parents) completed the DIRQ and questionnaires assessing their self-care and psychological well-being. Glycaemic control was assessed through retrieval of routine assay results. Study 4: participants (n = 70) completed the DIRQ and questionnaires to assess their psychological well-being, with glycaemic control assessed through retrieval of routine assay results.
The development studies suggest that the perceived consequences of diabetes consist of two subscales, perceived threat and perceived impact, and provide further support for the distinction between treatment effectiveness to control diabetes and treatment effectiveness to prevent complications. Along with the validation studies, the results indicate that the questionnaire scales showed good internal consistency and construct validity through their associations with measures of self-care and psychological well-being.
The data reported here suggest that the DIRQ has the potential to be a useful tool for clinical assessment and evaluating the impact of psycho-educational and medical interventions.
本文报告了一种针对1型糖尿病青少年的糖尿病特异性疾病认知问卷（DIRQ）的开发及有效性，该问卷用于评估个体对糖尿病认知的所有五个维度。
有两项开发研究。研究1：参与者（n = 115）完成了一份评估糖尿病后果认知和治疗效果的问卷，以及一份评估自我护理的问卷。研究2：参与者（n = 79）完成了一份评估他们的身份认同、时间线和因果信念的问卷，以及一份糖尿病自我效能和依从性障碍问卷。随后有两项验证研究。研究3：参与者（n = 44名青少年和28名家长）完成了DIRQ以及评估他们自我护理和心理健康的问卷。通过检索常规检测结果评估血糖控制情况。研究4：参与者（n = 70）完成了DIRQ和评估他们心理健康的问卷，通过检索常规检测结果评估血糖控制情况。
开发研究表明，糖尿病的感知后果由两个子量表组成，即感知威胁和感知影响，并为控制糖尿病的治疗效果与预防并发症的治疗效果之间的区别提供了进一步支持。与验证研究一起，结果表明问卷量表通过与自我护理和心理健康测量指标的关联显示出良好的内部一致性和结构效度。
此处报告的数据表明，DIRQ有可能成为临床评估以及评估心理教育和医疗干预影响的有用工具。
