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为患有危及生命疾病的儿童提供无缝服务:威尔士王妃戴安娜儿童社区服务中心专业人员的经验与建议

Providing a seamless service for children with life-limiting illness: experiences and recommendations of professional staff at the Diana Princess of Wales Children's Community Service.

作者信息

Danvers Lesley, Freshwater Dawn, Cheater Francine, Wilson Andrew

机构信息

Mary Seacole Research Centre, DeMontfort University, Leicester, UK.

出版信息

J Clin Nurs. 2003 May;12(3):351-9. doi: 10.1046/j.1365-2702.2003.00781.x.

DOI:10.1046/j.1365-2702.2003.00781.x
PMID:12709109
Abstract

The Diana Children's Community Teams (DCCTs), a new nurse-led service funded by the Department of Health, were established to provide care in the community as an alternative to hospital for children with life-threatening/life-limiting illnesses and their families. This paper presents selected findings highlighting the professionals' experiences which formed part of the evaluation of the Diana, Princess of Wales Children's Community Service in Leicester, Leicestershire and Rutland. The Diana Service in Leicestershire attempts to encompass both parental empowerment and interagency collaboration. By working in partnership with the children and their families, the team provides an integrated and multiprofessional community-based service. This paper particularly concentrates on the perceptions and recommendations from the Diana team itself. Three independently managed Community Nursing Services existed in Leicestershire prior to the Diana teams; a Paediatric Macmillan Service, a Children's Community Nursing Service and a Respite Service. The Leicestershire DCCT integrated the three nursing services into a single team. This team has moved away from a traditional uniprofessional service structure by encompassing a wider team of multiprofessionals, including a cultural link worker, an occupational therapist, a physiotherapist, a play specialist and a team of trained counsellors, working in partnership to provide a quality service for families. * The evaluation, which used a longitudinal multimethod process analysis based on an action research framework, suggests that children with complex and life-limiting illnesses and their families benefit greatly from an effective seamless service. This paper recommends a framework of care that may be relevant to other teams of children's community services across the country. This service has been judged by the impact it has had on the families who use it and the professionals employed within it.

摘要

戴安娜儿童社区团队(DCCTs)是一项由卫生部资助的新的护士主导服务项目,旨在为患有危及生命/限制生命疾病的儿童及其家庭提供社区护理,作为住院治疗的替代方案。本文介绍了部分研究结果,突出了专业人员的经验,这些经验是对莱斯特、莱斯特郡和拉特兰的威尔士王妃戴安娜儿童社区服务项目评估的一部分。莱斯特郡的戴安娜服务项目试图将增强家长权能和跨机构合作结合起来。通过与儿童及其家庭合作,该团队提供综合的、多专业的社区服务。本文特别关注戴安娜团队自身的看法和建议。在戴安娜团队成立之前,莱斯特郡有三个独立管理的社区护理服务项目:麦克米伦儿科服务项目、儿童社区护理服务项目和临时护理服务项目。莱斯特郡的戴安娜儿童社区团队将这三个护理服务项目整合为一个团队。该团队摒弃了传统的单一专业服务结构,组建了一个由更广泛的多专业人员组成的团队,包括一名文化联络工作者、一名职业治疗师、一名物理治疗师、一名游戏专家和一组训练有素的咨询师,他们携手合作,为家庭提供优质服务。* 该评估采用基于行动研究框架的纵向多方法过程分析,结果表明,患有复杂和限制生命疾病的儿童及其家庭从有效的无缝服务中受益匪浅。本文推荐了一个护理框架,可能适用于全国其他儿童社区服务团队。这项服务通过其对使用该服务的家庭以及其中 employed within it 是什么意思?感觉这里表述有误,应该是 employed in it,表示受雇于该服务的专业人员的影响来评判。 所雇佣的专业人员的影响来评判。

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