Gagnon Elizabeth M, Recklitis Christopher J
Ferkauf Graduate School of Psychology, Yeshiva University, Bronx, NY, USA.
Psychooncology. 2003 Jul-Aug;12(5):442-52. doi: 10.1002/pon.655.
This study investigated how parents' preferred level of control in treatment decision-making is related to their personal health care involvement and to their decision to use complementary therapies (CTs) for their child. One hundred-eighteen parents of pediatric oncology patients completed an anonymous CT survey. The Krantz Health Opinion Survey (KHOS) was used to determine parents' preferred involvement in personal health care, and the Control Preferences Scale for Pediatrics (CPS-P) measured preferred role in pediatric treatment decision-making. Unlike previous studies of adult cancer patients, most parents preferred active or collaborative decision-making. The KHOS and CPS-P were significantly correlated, indicating that parents' preferred role in children's treatment decisions was related to their own personal health care involvement. Forty-six percent of parents used CTs for their child, and 33% began using a new CT after diagnosis. The hypothesized relationship between CT use and parents' own health care involvement was partially supported. Preference for control in decision-making was not associated with CT use. These findings provide validation for the newly developed CPS-P and indicate that parents' decisions to use CT for their child are related in part to individual health care preferences.
本研究调查了父母在治疗决策中偏好的控制程度如何与他们个人的医疗保健参与度以及他们为孩子使用补充疗法（CTs）的决定相关。118名儿科肿瘤患者的父母完成了一项匿名的补充疗法调查。使用克兰茨健康意见调查（KHOS）来确定父母在个人医疗保健方面偏好的参与程度，儿科控制偏好量表（CPS-P）则测量了父母在儿科治疗决策中偏好的角色。与之前对成年癌症患者的研究不同，大多数父母更喜欢积极或协作式决策。KHOS和CPS-P显著相关，表明父母在孩子治疗决策中偏好的角色与他们自己的个人医疗保健参与度有关。46%的父母为孩子使用了补充疗法，33%在诊断后开始使用新的补充疗法。补充疗法的使用与父母自身医疗保健参与度之间的假设关系得到了部分支持。决策中的控制偏好与补充疗法的使用无关。这些发现为新开发的CPS-P提供了验证，并表明父母为孩子使用补充疗法的决定部分与个人医疗保健偏好有关。
