Butters E, Higginson I, George R, Smits A, McCarthy M
Department of Epidemiology and Public Health, University College London, UK.
Qual Life Res. 1992 Feb;1(1):47-51. doi: 10.1007/BF00435435.
We report the work of two community teams who care for people with AIDS/HIV related illness, the characteristics of patients referred, and the impact of the teams on four aspects of quality of life. Data was collected on 140 patients (85 St. Mary's Home Support Team, 55 Bloomsbury Community Care Team) who were referred to and remained in the care of these teams until death. All patients were male, mean age 37.9 years, 116 were homosexual. Most referrals were from genito-urinary medicine clinics (48%) or AIDS wards (41%). There was a wide range of reasons for referral. At referral 62% were in hospital and 35% at home. Mean time in care was 31 weeks 5 days. Fifty-seven per cent died in hospital, 22% at home and 21% in a hospice. The Support Team Assessment Schedule (STAS), consisting of 17 items of care, was used by the teams to measure aspects of quality of life. Throughout care until death four STAS items: pain control, symptom control, patient anxiety and practical aid are reported in detail. Symptom control was a commonly severe problem at referral and although the teams had some success in improving this item it remained a serious problem throughout care. Patient anxiety, also a commonly severe problem at referral, improved significantly throughout care. Pain control was less commonly severe at referral and improved significantly throughout care. Practical aid, in contrast, was rarely a severe problem at any stage of care.
我们报告了两个社区团队的工作情况，这两个团队负责照料患有艾滋病/艾滋病毒相关疾病的患者，介绍了被转诊患者的特征，以及这些团队对生活质量四个方面的影响。我们收集了140名患者的数据（85名来自圣玛丽家庭支持团队，55名来自布鲁姆斯伯里社区护理团队），这些患者被转诊至这些团队并一直接受护理直至死亡。所有患者均为男性，平均年龄37.9岁，其中116人为同性恋者。大多数转诊来自泌尿生殖医学诊所（48%）或艾滋病病房（41%）。转诊原因多种多样。转诊时，62%的患者住院，35%的患者在家中。平均护理时间为31周零5天。57%的患者在医院死亡，22%的患者在家中死亡，21%的患者在临终关怀机构死亡。团队使用由17项护理项目组成的支持团队评估表（STAS）来衡量生活质量的各个方面。在整个护理直至死亡的过程中，详细报告了四项STAS项目：疼痛控制、症状控制、患者焦虑和实际援助。症状控制在转诊时通常是一个严重问题，尽管团队在改善这一项目方面取得了一些成功，但在整个护理过程中它仍然是一个严重问题。患者焦虑在转诊时也是一个常见的严重问题，在整个护理过程中显著改善。疼痛控制在转诊时较少严重，在整个护理过程中显著改善。相比之下，实际援助在护理的任何阶段都很少是严重问题。
