Balkrishnan Rajesh, Manuel Janeen, Clarke Jan, Carroll Christie L, Housman Tamara S, Fleischer Alan B
Department of Dermatology, Wake Forest University School of Medicine, Winston-Salem, NC 27157, USA.
J Pediatr Health Care. 2003 Jul-Aug;17(4):184-9. doi: 10.1067/mph.2003.32.
Although some preliminary work has examined the impact of atopic dermatitis (AD) on families, no empirical work has examined changes in the impact on families dealing with AD over time. An exploratory analysis of change in impact on families dealing with AD before and after an episode of medical care in a physician office setting was conducted.
Baseline and follow-up surveys were completed by 35 parent caregivers before and 1 month after a dermatologist visit for the child at an academic medical center.
In the postcare survey, there was a 43% reduction in the Dermatitis Family Impact Questionnaire (DFI) scores (P <.01) compared with baseline. Significant differences were also observed in other parent caregiver-reported characteristics. The significant change in parent caregiver characteristic associated with the decreased DFI score was the increased satisfaction with the medical care related to the child's treatment (P <.01).
These data reveal that there is a strong decrease in impact on a family associated with an episode of specialist care for children with AD. The importance of pediatric health care professionals in decreasing the impact of AD on families needs further exploration.
尽管一些初步研究探讨了特应性皮炎（AD）对家庭的影响，但尚无实证研究考察过随着时间推移，AD对家庭影响的变化情况。我们对在医生办公室环境中接受医疗护理前后，AD对家庭影响的变化进行了探索性分析。
35名家长照顾者在孩子于学术医疗中心皮肤科就诊前及就诊后1个月，分别完成了基线调查和随访调查。
在护理后调查中，与基线相比，皮炎家庭影响问卷（DFI）得分降低了43%（P<.01）。在其他家长照顾者报告的特征方面也观察到了显著差异。与DFI得分降低相关的家长照顾者特征的显著变化是对与孩子治疗相关的医疗护理的满意度提高（P<.01）。
这些数据表明，AD患儿接受专科护理后，家庭受到的影响大幅降低。儿科医疗保健专业人员在减轻AD对家庭影响方面的重要性有待进一步探索。
