Gillett James
Health Studies Programme and the Department of Sociology, McMaster University, Hamilton, Ontario, Canada.
Sociol Health Illn. 2003 Sep;25(6):608-24. doi: 10.1111/1467-9566.00361.
This paper seeks to understand better the media practices of people who are directly affected by an illness or health problem. Internet sites that have been created by people with HIV/AIDS are examined as a strategy for self-representation. This analysis identifies four prominent 'organising themes' in Internet sites: autobiography; expertise; self promotion; and dissent. It is argued that there is a connection between media activism within the contemporary AIDS movement and Internet use among people with HIV/AIDS. This paper discusses the potential of the Internet, as a form of media activism, to raise the private troubles of people with health problems as public issues through a revitalisation of the public sphere in contemporary post-industrial societies.
本文旨在更深入地了解直接受疾病或健康问题影响的人群的媒体实践。对由艾滋病毒/艾滋病患者创建的网站进行了考察，将其作为一种自我呈现的策略。该分析确定了网站中四个突出的“组织主题”：自传；专业知识；自我推广；以及异议。有人认为，当代艾滋病运动中的媒体行动主义与艾滋病毒/艾滋病患者使用互联网之间存在联系。本文探讨了互联网作为一种媒体行动主义形式，通过振兴当代后工业社会的公共领域，将健康问题患者的个人困扰提升为公共问题的潜力。
