Hubbard G, Downs M G, Tester S
Department of General Practice, University of Glasgow, Glasgow G12 ORR, Scotland.
Aging Ment Health. 2003 Sep;7(5):351-62. doi: 10.1080/1360786031000150685.
This paper examines key challenges and strategies for including older people with dementia in an ethnographic study of quality of life in institutional care settings. The methods of interview and observation are described in relation to meeting four research challenges: verbal communication impairment, memory loss, decision-making capacity, and emotional disposition. A range of strategies for privileging the voice of the person with dementia is recommended which include: using different methods be spoke to each person with dementia; greater flexibility and time; preliminary meetings with the person with dementia; discussions with formal and informal carers; and research training. The researchers also conclude that the use of observation and interview are 'meaning-making occasions' which are qualitatively different but equally valuable for understanding quality of life in care settings.
本文探讨了在机构护理环境中对患有痴呆症的老年人进行生活质量人种志研究时面临的关键挑战和策略。针对言语沟通障碍、记忆丧失、决策能力和情绪倾向这四个研究挑战，描述了访谈和观察方法。推荐了一系列赋予痴呆症患者话语权的策略，包括：对每位痴呆症患者采用不同的沟通方式；更大的灵活性和更多的时间；与痴呆症患者进行初步会面；与正式和非正式护理人员进行讨论；以及开展研究培训。研究人员还得出结论，观察和访谈的运用是“意义建构的契机”，它们在性质上有所不同，但对于理解护理环境中的生活质量同样有价值。
