Talking Mats Centre, Stirling University Innovation Park, University of Stirling, UK.
Health Soc Care Community. 2013 Mar;21(2):171-80. doi: 10.1111/hsc.12005. Epub 2012 Oct 24.
Policy guidelines insist that people with dementia should be involved in decisions about key life choices and transitions. However, as dementia affects both cognitive and communication difficulties, it becomes increasingly difficult to do this, and innovative and effective ways to support people with dementia and their carers to interact with each other are needed. This project, funded by Joseph Rowntree Foundation, examined if Talking Mats, a low-tech communication framework, could support family carers and people with dementia to discuss issues around daily living with each other. The fieldwork phase took place from September 2008 to May 2009. Eighteen couples (person with dementia and their family carer) from Scotland and the North of England were involved. The couples were visited in their own homes and asked to discuss together four topics (Personal Care; Getting Around; Housework; Activities) under two different conditions: (i) using the Talking Mats framework and (ii) using their usual communication methods (UCMs). After the interviews, each participant was asked separately to complete a short questionnaire (Involvement Measure), which included five questions to evaluate how involved s/he felt in each type of discussion and a final question to measure satisfaction with the overall discussion. The findings show that both people with dementia and their carers feel more involved in discussions about how they are managing their daily living when using the Talking Mats framework, compared with their UCM. They also feel more satisfied with the outcome of those discussions. The use of Talking Mats could result in increased well-being and positive adjustment to accepting increasing levels of care for people with dementia. In addition, it could improve the relationship between the person with dementia and family carers, if all involved feel that the views of the person with dementia and the family carer have truly been acknowledged.
政策指南坚持认为,应该让痴呆症患者参与有关关键生活选择和过渡的决策。然而,由于痴呆症会影响认知和沟通困难,因此越来越难以做到这一点,需要创新和有效的方法来支持痴呆症患者及其照顾者相互交流。该项目由约瑟夫·朗特里基金会资助,研究了 Talking Mats(一种低技术交流框架)是否可以支持家庭照顾者和痴呆症患者彼此之间讨论日常生活问题。实地工作阶段于 2008 年 9 月至 2009 年 5 月进行。来自苏格兰和英格兰北部的 18 对夫妇(痴呆症患者及其家庭照顾者)参与了该项目。这些夫妇在家中接受了访问,并被要求在两种不同条件下一起讨论四个话题(个人护理;出行;家务;活动):(i)使用 Talking Mats 框架,(ii)使用他们常用的沟通方法(UCMs)。访谈结束后,每位参与者分别被要求填写一份简短的问卷(参与度量表),该问卷包括五个问题,用于评估他们在每种类型的讨论中的参与程度,以及一个最终问题,用于衡量对整体讨论的满意度。研究结果表明,与使用 UCM 相比,痴呆症患者及其照顾者在使用 Talking Mats 框架讨论他们如何管理日常生活时,感觉自己更有参与感。他们也对这些讨论的结果感到更满意。Talking Mats 的使用可以提高痴呆症患者的幸福感和积极适应不断增加的护理水平。此外,如果所有相关人员都认为真正认可了痴呆症患者和家庭照顾者的观点,那么它还可以改善痴呆症患者和家庭照顾者之间的关系。