Mercier M, Schraub S, Bransfield D D, Fournier J
University of Franche-Comte, College of Medicine and Pharmacy, Besançon, France.
Qual Life Res. 1992 Feb;1(1):53-61. doi: 10.1007/BF00435436.
A three-part study evaluated French cancer patients' acceptance of self-rated quality of life measures, the predictive value of these measures, and the agreement between patient and health provider ratings of patient quality of life. In part one, 93% of 137 patients indicated a willingness to complete the Qualite de la Vie-Questionnaire (QOL-Q) and Analogues Lineaires pour la Mesure de la Qualite de vie (LA), and 63.6% indicated a willingness to be interviewed by a psychologist. Willingness to complete the scales was related to hospitalization status and treatment modality. In parts two and three, 100 patients were asked to complete the QOL-Q, LA, the Karnofsky Index (KI) and a side-effects checklist, and to undergo a psychological interview. Following interview, a psychologist rated the patients using the QOL-Q, and classified patient level of emotional distress. Oncologists rated the patient using the KI and the side-effects checklist. The results indicate that the patients' ratings of their quality of life were higher than the psychologist's ratings, and that the QOL-Q has predictive value in identifying severe emotional distress. Low level of patient and physician agreement on the KI was partially explained by patient age and cancer site. A moderate level of agreement was found between patient and physician perceptions of side effects. The study suggests that the QOL-Q, not the LA, may be useful as a screening tool to identify patients with impaired quality of life, and that self-rated measures should be included in quality of life assessments.
一项分为三个部分的研究评估了法国癌症患者对自评生活质量测量方法的接受程度、这些测量方法的预测价值，以及患者与医疗服务提供者对患者生活质量评分之间的一致性。在第一部分中，137名患者中有93%表示愿意完成生活质量问卷（QOL-Q）和生活质量线性模拟量表（LA），63.6%表示愿意接受心理学家的访谈。完成量表的意愿与住院状态和治疗方式有关。在第二和第三部分中，100名患者被要求完成QOL-Q、LA、卡氏评分指数（KI）和一份副作用清单，并接受一次心理访谈。访谈后，一名心理学家使用QOL-Q对患者进行评分，并对患者的情绪困扰程度进行分类。肿瘤学家使用KI和副作用清单对患者进行评分。结果表明，患者对其生活质量的评分高于心理学家的评分，并且QOL-Q在识别严重情绪困扰方面具有预测价值。患者和医生在KI上的低一致性部分可由患者年龄和癌症部位来解释。患者和医生对副作用的认知之间存在中等程度一致性。该研究表明，QOL-Q而非LA可能作为一种筛查工具来识别生活质量受损的患者，并且自评测量方法应纳入生活质量评估中。
