Vergnenegre A, Triki H, Letenneur L, Jeandeau S, Melloni B, Samptiaux P, Gastinne H, Bonnaud F
Service de Pathologie Respiratoire et d'Allergologie, Hôpital universitaire du Cluzeau, Limoges.
Rev Pneumol Clin. 1992;48(6):253-62.
Chronic respiratory diseases (C.R.D.) induce changes in daily activities and mood for the patients who require respiratory assistance (oxygen delivery or ventilation). The aim of this study was to compare physical and social consequences of this disease. A self administered questionnaire was sent to one hundred patients, over sixty five years of age, who were affiliated with the "Association Limousine d'Aide aux Insuffisants Respiratories" (A.L.A.I.R.). The mean age was 72.4 +/- 0.66 (65-92), the mean PaO2 was 54 mm Hg +/- 0.2 (39-76). C.R.D. was stable during the study and treatments did not change. The questionnaire was composed of four scales and twenty-eight subjects; each item was weighed for importance. Subjects included: symptoms, mood, sleep, relationships with their wife or family, home activities. Eighty-five questionnaires were analysed. Reproductibility was good (92%) and non-responses to some questions was less than 10%. Coherence between the scales and the twenty-eight items was poor. Regression linear analysis found that only dyspnea was correlated with PaO2 (p < 0.007). For patients, the most important items were: abnormalities of home activities (37%), dyspnea (38%), relationships with their wife (39%) or family (45%), dependence (52%) and perception of A.L.A.I.R. (77%). Quality of life is an important concept for these patients with C.R.D. versus clinical symptoms. Perception of respiratory assistance is very good.
慢性呼吸道疾病(C.R.D.)会导致需要呼吸辅助(输氧或通气)的患者日常活动和情绪发生变化。本研究的目的是比较这种疾病对身体和社交方面的影响。我们向100名年龄超过65岁、隶属于“利穆赞呼吸功能不全辅助协会”(A.L.A.I.R.)的患者发放了一份自填式问卷。平均年龄为72.4±0.66岁(65 - 92岁),平均动脉血氧分压(PaO2)为54毫米汞柱±0.2(39 - 76)。在研究期间,C.R.D.病情稳定,治疗方案未发生变化。问卷由四个量表和28个项目组成;每个项目都根据重要性进行了加权。项目包括:症状、情绪、睡眠、与妻子或家人的关系、家庭活动。对85份问卷进行了分析。问卷的可重复性良好(92%),对一些问题未作答的比例低于10%。量表与28个项目之间的一致性较差。线性回归分析发现,只有呼吸困难与PaO2相关(p < 0.007)。对于患者来说,最重要的项目是:家庭活动异常(37%)、呼吸困难(38%)、与妻子(39%)或家人(45%)的关系、依赖感(52%)以及对A.L.A.I.R.的认知(77%)。对于这些患有C.R.D.的患者而言,生活质量相对于临床症状是一个重要概念。对呼吸辅助的认知非常好。