McBurney Helen, Taylor Nicholas F, Dodd Karen J, Graham H Kerr
School of Physiotherapy, Faculty of Health Sciences, La Trobe University, Victoria, Australia.
Dev Med Child Neurol. 2003 Oct;45(10):658-63. doi: 10.1017/s0012162203001233.
This qualitative study investigated the positive and negative outcomes of a home-based strength-training programme for young people with cerebral palsy (CP). Eleven young people with spastic diplegic CP (seven females, four males; mean age 12 years 9 months, SD 2 years 10 months; range 8 to 18 years) and their parents were interviewed. Gross Motor Function Classification System scores ranged from I (walks without limitations) to III (walks with assistive device), with a mode of III. The strength-training programme, which was conducted in the participants' homes three times per week for 6 weeks (total of 18 prescribed sessions), comprised three exercises targeting the major support muscles of the lower limbs. Exercises were bilateral half squats, heel raises, and step-ups. The training load was increased by adding free weights to a backpack so that 8 to 10 repetitions of each exercise could be performed. Using thematic coding, three categories of outcome emerged: body function and structure, activity, and participation, which were influenced by environmental and personal contextual factors. The programme generated overwhelmingly positive outcomes with only minor negative responses about some equipment and the need for parental involvement. Benefits included perceptions that strength, flexibility, posture, walking, and the ability to negotiate steps had improved. In addition, participants reported psychological benefits such as a feeling of increased well-being and improved participation in school and leisure activities. The contextual factors highlighted the fact that sufficient clinician resources must be allocated to solve individual exercise and equipment problems. As well as providing further evidence that strength training can be beneficial, this study provides useful indicators to guide future quantitative studies of outcomes that are meaningful for people with CP.
这项定性研究调查了一项针对脑瘫(CP)青少年的居家力量训练计划的积极和消极结果。对11名痉挛性双侧瘫脑瘫青少年(7名女性,4名男性;平均年龄12岁9个月,标准差2岁10个月;年龄范围8至18岁)及其父母进行了访谈。粗大运动功能分类系统评分从I级(无限制行走)到III级(使用辅助设备行走),其中III级为众数。力量训练计划在参与者家中每周进行3次,共6周(规定的训练课程总计18节),包括针对下肢主要支撑肌肉的三项练习。练习项目为双侧半蹲、提踵和上台阶。通过在背包中增加哑铃来增加训练负荷,以便每项练习能够进行8至10次重复。使用主题编码法,出现了三类结果:身体功能和结构、活动以及参与,这些结果受到环境和个人背景因素的影响。该计划产生了压倒性的积极结果,仅对一些设备以及家长参与的必要性有轻微的负面反馈。益处包括感觉力量、灵活性、姿势、行走以及上下台阶能力有所改善。此外,参与者报告了心理方面的益处,比如幸福感增强以及在学校和休闲活动中的参与度提高。背景因素凸显了必须分配足够的临床医生资源来解决个体的练习和设备问题这一事实。这项研究不仅进一步证明了力量训练可能有益,还提供了有用的指标,以指导未来对脑瘫患者有意义的结果进行定量研究。