Shikako-Thomas Keiko, Dahan-Oliel Noémi, Shevell Michael, Law Mary, Birnbaum Rena, Rosenbaum Peter, Poulin Chantal, Majnemer Annette
School of Physical and Occupational Therapy, McGill University, Montreal, QC, Canada.
Int J Pediatr. 2012;2012:387280. doi: 10.1155/2012/387280. Epub 2012 Aug 7.
The objective of this study was to examine the association between leisure participation and quality of life (QoL) in school-age children with cerebral palsy (CP). Leisure participation was assessed using the Children's Assessment of Participation and Enjoyment (CAPE) and QoL using the Pediatric Quality of Life Inventory (PedsQL). Pearson correlation coefficients were calculated to examine the association between CAPE and PedsQL scores, and a multiple linear regression model was used to estimate QoL predictors. Sixty-three children (mean age 9.7 ± 2.1 years; 39 male) in GMFCS levels I-V were included. Intensity of participation in active-physical activities was significantly correlated with both physical (r = 0.34, P = 0.007) and psychosocial well-being (r = 0.31, P = 0.01). Intensity and diversity of participation in skill-based activities were negatively correlated with physical well-being (r = -0.39, P = 0.001, and r = -0.41, P = 0.001, resp.). Diversity and intensity of participation accounted for 32% (P = 0.002) of the variance for physical well-being and 48% (P < 0.001) when age and gross motor functioning were added. Meaningful and adapted leisure activities appropriate to the child's skills and preferences may foster QoL.
本研究的目的是探讨学龄期脑瘫（CP）儿童的休闲参与度与生活质量（QoL）之间的关联。采用儿童参与和享受评估量表（CAPE）评估休闲参与度，采用儿童生活质量量表（PedsQL）评估生活质量。计算Pearson相关系数以检验CAPE与PedsQL得分之间的关联，并使用多元线性回归模型估计生活质量的预测因素。纳入了63名GMFCS I - V级的儿童（平均年龄9.7±2.1岁；39名男性）。积极体育活动的参与强度与身体幸福感（r = 0.34，P = 0.007）和心理社会幸福感（r = 0.31，P = 0.01）均显著相关。基于技能活动的参与强度和多样性与身体幸福感呈负相关（分别为r = -0.39，P = 0.001和r = -0.41，P = 0.001）。当加入年龄和粗大运动功能时，参与的多样性和强度解释了身体幸福感方差的32%（P = 0.002）以及48%（P < 0.001）。适合儿童技能和偏好的有意义且经过调整的休闲活动可能会提高生活质量。
