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[风湿病患者教育的质量保证]

[Quality assurance of rheumatologic patient education].

作者信息

Langer Hans-Eckhard, Ehlebracht-König Inge, Mattussek Sigrid

机构信息

Rheumatologische Schwerpunktpraxis am Evangelischen Krankenhaus Düsseldorf.

出版信息

Z Arztl Fortbild Qualitatssich. 2003;97(6):357-63.

Abstract

Since 1989 patient education programmes for patients with rheumatoid arthritis, ankylosing spondylitis and other spondylarthropathies, systemic lupus erythematosus, vasculitis, fibromyalgia, and juvenile chronic arthritis and their parents have been developed by an interdisciplinary team of the German Society of Rheumatology (Deutsche Gesellschaft für Rheumatologie). Up to date, about 500 people were trained to be group leaders or specialised trainers with an associated train-the-trainer program. In 1999, the Society discharged preliminary guidelines for patient education in rheumatology. Prospective randomised studies demonstrated that patient education led both to an improvement of knowledge, self-efficacy and self-help activities and to an improvement of arthritis-related helplessness and pain, and a reduction of both temporary and permanent disability.

摘要

自1989年以来,德国风湿病学会(Deutsche Gesellschaft für Rheumatologie)的一个跨学科团队为类风湿性关节炎、强直性脊柱炎和其他脊柱关节病、系统性红斑狼疮、血管炎、纤维肌痛以及青少年慢性关节炎患者及其家长制定了患者教育计划。截至目前,通过相关的培训师培训计划,约500人接受了培训,成为小组组长或专业培训师。1999年,该学会发布了风湿病患者教育的初步指南。前瞻性随机研究表明,患者教育既能提高知识水平、自我效能感和自助活动能力,又能改善与关节炎相关的无助感和疼痛,并减少临时和永久性残疾。

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