Miceli Penny J, Mylod Deirdre E
Research and Development Department, Press Ganey Associates, Inc., South Bend, Indiana, USA.
Am J Hosp Palliat Care. 2003 Sep-Oct;20(5):360-70. doi: 10.1177/104990910302000510.
This study examined the satisfaction of family members with the end-of-life care their loved ones received. Data were collected from 1,839 individuals receiving care from 17 different care agencies nationwide. Although family satisfaction with hospice care was generally quite high. situational factors played a role. The timing of the referral was critical, with families rating services lower almost across the board when the referral to hospice was deemed "too late." Additionally, families expressed greater satisfaction when the patient's care was overseen by the hospice director, rather than a personal physician. Each of these findings has important implications for physicians, patients, and families as they begin to plan for end-of-life care.
本研究调查了家庭成员对其亲人所接受的临终关怀服务的满意度。数据收集自全国17家不同护理机构的1839名接受护理的人员。尽管家庭成员对临终关怀服务的总体满意度相当高，但情境因素也起到了一定作用。转诊时机至关重要，当临终关怀转诊被认为“太晚”时，家庭成员对服务的评分几乎普遍较低。此外，当患者的护理由临终关怀主任而非私人医生监督时，家庭成员表示更满意。这些研究结果对医生、患者及其家属在开始规划临终关怀时均具有重要意义。
