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不同环境下临终关怀的质量差异:来自美国 Medicare 受益人的国家健康老龄化趋势研究的结果。

Differences of Quality in End-of-Life Care across Settings: Results from the U.S. National Health and Aging Trends Study of Medicare Beneficiaries.

机构信息

School of Social Work, University of Illinois at Urbana-Champaign, Urbana, Illinois, USA.

Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, California, USA.

出版信息

J Palliat Med. 2020 Sep;23(9):1198-1203. doi: 10.1089/jpm.2019.0297. Epub 2020 Mar 9.

DOI:10.1089/jpm.2019.0297
PMID:32155358
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7640750/
Abstract

More than 2.5 million older Americans die each year. Place of residence in which dying patients receive care plays a crucial role in the quality of end-of-life (EOL) care. This study aimed to compare proxies' overall rating and ratings for 13 indicators across five major domains of EOL care by place of residence in the last month of decedents' lives. We used data from the National Health and Aging Trends Study, a nationally representative study of Medicare beneficiaries at age 65 years and older in the United States. Analyses included proxies ( = 1336) of Medicare beneficiaries who passed away between 2013 and 2016. Proxies were categorized into four groups, depending on place of residence in the last month of life and the involvement of hospice. Quality of EOL care was assessed using questions modeled after quality of EOL care instruments. We adjusted for demographic data of decedents and proxies. Hospice recipients, regardless of setting, were more likely to experience pain and talk about religion in the last month of life; families of patients without hospice in residential care settings were more likely to report not being kept informed; proxies of patients living in private residences with hospice care reported higher overall ratings. Among hospice recipients, those living in private residences were more likely to be treated with respect. Disparities exist across settings and in overall ratings for quality of EOL domains-particularly, the subdomains of symptom management, decision making, and spiritual needs.

摘要

每年有超过 250 万的美国老年人去世。临终患者接受护理的居住地点在临终关怀质量方面起着至关重要的作用。本研究旨在比较在患者生命的最后一个月中,不同居住地点的护理代理人对五个主要临终关怀领域的 13 项指标的整体评分和评分。我们使用了来自美国全国健康老龄化趋势研究的数据,这是一项针对 65 岁及以上医疗保险受益人的全国代表性研究。分析包括在 2013 年至 2016 年间去世的医疗保险受益人的护理代理人(n=1336)。代理人根据生命最后一个月的居住地点和临终关怀的参与情况分为四组。临终关怀质量使用基于临终关怀质量工具的问题进行评估。我们根据死者和代理人的人口统计学数据进行了调整。无论设置如何,接受临终关怀的患者更有可能在生命的最后一个月经历疼痛并谈论宗教;没有接受临终关怀的患者在居住护理环境中的家属更有可能报告没有得到通知;在私人住宅中接受临终关怀的患者的代理人报告了更高的整体评分。在接受临终关怀的患者中,那些居住在私人住宅中的患者更有可能受到尊重。不同的环境存在差异,在临终关怀领域的整体评分方面存在差异-特别是在症状管理、决策和精神需求等子领域。

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本文引用的文献

1
Quality of dying and quality of end-of-life care of nursing home residents in six countries: An epidemiological study.六个国家养老院居民临终质量和临终关怀质量:一项流行病学研究。
Palliat Med. 2018 Dec;32(10):1584-1595. doi: 10.1177/0269216318800610. Epub 2018 Oct 1.
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The Quality of Dying and Death in a Residential Hospice.《临终关怀机构中的临终与死亡质量》。
J Pain Symptom Manage. 2018 Oct;56(4):567-574. doi: 10.1016/j.jpainsymman.2018.07.004. Epub 2018 Jul 19.
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Site of Death, Place of Care, and Health Care Transitions Among US Medicare Beneficiaries, 2000-2015.美国医疗保险受益人 2000-2015 年的死亡地点、护理地点和医疗保健转移情况。
JAMA. 2018 Jul 17;320(3):264-271. doi: 10.1001/jama.2018.8981.
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A Review of Palliative and Hospice Care in the Context of Islam: Dying with Faith and Family.伊斯兰教背景下的姑息治疗与临终关怀综述:带着信仰与家人离世
J Palliat Med. 2017 Nov;20(11):1284-1290. doi: 10.1089/jpm.2017.0340. Epub 2017 Aug 11.
5
Variation in Hospice Services by Location of Care: Nursing Home Versus Assisted Living Facility Versus Home.临终关怀服务因照护地点而异:养老院、辅助生活设施与居家照护的比较
J Am Geriatr Soc. 2017 Jul;65(7):1490-1496. doi: 10.1111/jgs.14826. Epub 2017 Mar 14.
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Dying in the hospital setting: A meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important.在医院环境中离世:一项元综合分析,确定患者及其家属认为重要的临终关怀要素。
Palliat Med. 2017 Jul;31(7):587-601. doi: 10.1177/0269216316673547. Epub 2016 Dec 8.
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Pain Assessment, Management, and Control Among Patients 65 Years or Older Receiving Hospice Care in the U.S.美国65岁及以上接受临终关怀患者的疼痛评估、管理与控制
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Quality of End-of-Life Care Provided to Patients With Different Serious Illnesses.不同严重疾病患者临终关怀质量。
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The changing demographics of inpatient hospice death: Population-based cross-sectional study in England, 1993-2012.住院临终关怀死亡的人口统计学变化:1993 - 2012年英格兰基于人群的横断面研究
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Is Care for the Dying Improving in the United States?美国对临终者的护理正在改善吗?
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