Pelchat Diane, Lefebvre Hélène, Perreault Michel
Interdisciplinary Team for Family Research (ERIFAM), Faculty of Nursing, University of Montreal, Montreal Centre for Interdisciplinary Research in Rehabilitation (CRIR), Canada.
J Child Health Care. 2003 Dec;7(4):231-47. doi: 10.1177/13674935030074001.
This qualitative study used focus groups to identify the differences and similarities in the experiences of parents of children with a disability. Two main themes emerged, showing the ways in which the mothers and fathers are alike or different. One concerns roles, actual and expected, in the various subsystems of family life. The other concerns the normalization and stigmatization that arise because of the child's problem. Mothers tend to score better in terms of interpersonal and group communications. It would seem that the fathers' expectations are harder to fulfil than the mothers'. The fathers' expectations are attuned to the outer world; the actual day-to-day tasks related to the child's care are not their priority. The mothers are less demanding and their expectations are more self-focused. Interestingly, these families are similar to families of children without a disability; however, the difficulties they experience are accentuated by the presence of a child with a problem.
这项定性研究通过焦点小组来确定残疾儿童家长经历中的异同。出现了两个主要主题，展示了母亲和父亲的异同之处。一个涉及在家庭生活的各个子系统中实际和期望扮演的角色。另一个涉及因孩子的问题而产生的正常化和污名化。在人际和群体沟通方面，母亲往往得分更高。似乎父亲的期望比母亲的更难实现。父亲的期望与外部世界相契合；与照顾孩子相关的日常实际任务并非他们的首要任务。母亲的要求较低，她们的期望更以自我为中心。有趣的是，这些家庭与非残疾儿童的家庭相似；然而，孩子有问题使他们所经历的困难更加突出。
