Lisa Skär R N
Department of Health Sciences, Luleå University of Technology, Boden S-961 36, Sweden.
J Adolesc. 2003 Dec;26(6):635-49. doi: 10.1016/s0140-1971(03)00061-7.
The purpose of this study was to enhance our knowledge of what it is like to grow up with a disability, specifically, with focus on how adolescents with restricted mobility perceive social roles and relationships to peers and adults. The group investigated consisted of 12 adolescents with restricted mobility from northern Sweden, aged from 15 to 19 years. The adolescents were individually interviewed. The analysis resulted in a core category (Who am I), which describes how the adolescents perceive themselves. The core category was related to three subcategories: Relationships to friends--describes the adolescents' experiences of peer relationships, Relationships to adults--describes adolescents' relationships to adults, Thoughts about relationships in the future--comprises wishes for future relationships. The results indicated that the 12 disabled adolescents saw themselves as regular members of the adolescent peer group but that the members of the adolescent group saw them as being different. The relationships to friends of the same age were either markedly defective or did not exist at all, while relationships to adults were often characterized as ambivalent or asymmetric, i.e. the adults were simultaneously helpful and supportive while over protective and dominant. The study revealed that despite the many hindrances, the adolescents had a comparatively positive view of their future.
本研究的目的是增进我们对残疾青少年成长经历的了解，具体而言，重点关注行动不便的青少年如何看待社会角色以及与同龄人和成年人的关系。所调查的群体由12名来自瑞典北部、年龄在15至19岁之间且行动不便的青少年组成。对这些青少年进行了单独访谈。分析得出一个核心类别（我是谁），它描述了青少年如何看待自己。该核心类别与三个子类别相关：与朋友的关系——描述青少年的同伴关系经历；与成年人的关系——描述青少年与成年人的关系；对未来关系的思考——包括对未来关系的期望。结果表明，这12名残疾青少年将自己视为青少年同龄群体的正常成员，但青少年群体的成员却认为他们与众不同。与同龄朋友的关系要么明显有缺陷，要么根本不存在，而与成年人的关系往往具有矛盾或不对称的特点，即成年人既给予帮助和支持，同时又过度保护和强势。研究表明，尽管存在诸多障碍，这些青少年对自己的未来仍持相对积极的看法。
