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儿童电子疼痛日记与纸质疼痛日记的随机试验:对依从性、准确性和可接受性的影响。

A randomized trial of electronic versus paper pain diaries in children: impact on compliance, accuracy, and acceptability.

作者信息

Palermo Tonya M, Valenzuela Duaré, Stork Paul P

机构信息

Department of Pediatrics, Division of Behavioral Pediatrics and Psychology, Rainbow Babies and Children's Hospital, 11100 Euclid Avenue, Cleveland, OH 44106, USA Weatherhead School of Management, Case Western Reserve University, Cleveland, OH 44106, USA.

出版信息

Pain. 2004 Feb;107(3):213-219. doi: 10.1016/j.pain.2003.10.005.

Abstract

Electronic diary assessment of pain and disability has become increasingly popular in adult chronic pain research but use of this methodology with children has received limited attention. The aim of this study was to compare two formats of a prospective daily diary (handheld computer=e-diary; paper diary=p-diary) on children's compliance, accuracy, and acceptability ratings. Sixty children, ages 8-16 (M=12.3) with headaches or juvenile idiopathic arthritis, were randomized to receive either e-diaries administered via home visits (n=30) or p-diaries (n=30) handed out during clinic visits for return by mail. Results demonstrated significant mean differences in diary entries completed between groups, with children with e-diaries completing more days (M=6.6) compared to children with p-diaries (M=3.8), P<0.001. Diaries returned by children in the p-diary group contained significantly more errors and omissions compared to diaries returned by children in the e-diary group (which contained none), P<0.001. Children rated both diary formats as highly acceptable and easy to use. A significant gender x diary format interaction (P<0.01) was found for compliance where boys demonstrated greater compliance with the e-diary format. Findings demonstrated that the e-diary was feasible to use with children and showed significantly greater compliance and accuracy in diary recording compared to traditional paper diaries in a population of children with recurrent pain.

摘要

在成人慢性疼痛研究中,通过电子日记评估疼痛和残疾状况越来越普遍,但这种方法在儿童中的应用却很少受到关注。本研究旨在比较两种前瞻性日常日记形式(手持电脑电子日记;纸质日记)在儿童的依从性、准确性和可接受性评分方面的差异。60名年龄在8至16岁(平均年龄12.3岁)、患有头痛或幼年特发性关节炎的儿童被随机分为两组,一组通过家访接收电子日记(n = 30),另一组在门诊就诊时分发纸质日记(n = 30),要求通过邮寄方式返还。结果显示,两组之间完成的日记条目存在显著的平均差异,电子日记组的儿童完成的天数更多(平均6.6天),而纸质日记组的儿童为(平均3.8天),P<0.001。与电子日记组儿童返还的日记(无错误和遗漏)相比,纸质日记组儿童返还的日记包含的错误和遗漏显著更多,P<0.001。儿童对两种日记形式的评价均为高度可接受且易于使用。在依从性方面发现了显著的性别×日记形式交互作用(P<0.01),男孩对电子日记形式的依从性更高。研究结果表明,在患有复发性疼痛的儿童群体中,电子日记对儿童来说是可行的,并且与传统纸质日记相比,在日记记录方面显示出显著更高的依从性和准确性。

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