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患者的权力与控制权:对病情轨迹不明的女性的一项研究。

Patient power and control: a study of women with uncertain illness trajectories.

作者信息

Asbring Pia, Närvänen Anna-Liisa

机构信息

Stockholm Center of Public Health, Department of Public Health Sciences, Karolinska Institutet, Stockholm, Sweden.

出版信息

Qual Health Res. 2004 Feb;14(2):226-40. doi: 10.1177/1049732303260682.

DOI:10.1177/1049732303260682
PMID:14768459
Abstract

The authors interviewed 12 women diagnosed with chronic fatigue syndrome and 13 with fibromyalgia with the aim of determining the strategies they perceive themselves as using to gain control over their situation during the health care process. The results highlight various strategies that the women report applying to find a way of managing the illness and to influence caregivers. They describe, for example, how they try to gain control over their situation by acquiring knowledge about the illness. The women also describe various power strategies they use in their interaction with the caregivers to take command of their situation, namely exiting, noncompliance, confrontation, persuasion/insistence, making demands, and demonstrative distancing.

摘要

作者采访了12名被诊断患有慢性疲劳综合征的女性和13名患有纤维肌痛的女性,目的是确定她们认为自己在医疗保健过程中用来控制自身状况的策略。结果突出了这些女性报告的各种策略,她们通过这些策略来找到应对疾病的方法并影响护理人员。例如,她们描述了自己如何试图通过获取有关疾病的知识来控制自身状况。这些女性还描述了她们在与护理人员互动中使用的各种权力策略,以掌控自己的状况,即退出、不依从、对抗、劝说/坚持、提出要求和表现出距离感。

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