McManimen Stephanie, McClellan Damani, Stoothoff Jamie, Gleason Kristen, Jason Leonard A
a Center for Community Research , DePaul University , Chicago , Illinois , USA.
Health Care Women Int. 2019 Mar;40(3):241-258. doi: 10.1080/07399332.2018.1521811. Epub 2019 Mar 4.
In the US, medical training is inadequate regarding the symptomatology, prognosis, and treatment for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). As a result, many physicians lack the appropriate level of knowledge about effective methods for ME and CFS symptom reduction and often suggest inappropriate treatments, such as increased exercise or psychiatric services. The authors' purpose in this study was to analyze negative patient experiences with health care professionals. Patients with ME and CFS who reported experiencing a dismissive physician attitude were asked to detail the encounter via open-ended response on an international, online survey. Participant responses were thematically coded and analyzed using processes outlined by Patton. Emergent themes related to perceived physician attitudes and how they impact patient wellbeing are described and their implications discussed. Additionally, we highlight suggestions for how the health care system can effectively approach this often marginalized patient group.
在美国,医学培训在肌痛性脑脊髓炎(ME)和慢性疲劳综合征(CFS)的症状学、预后及治疗方面存在不足。因此,许多医生对减轻ME和CFS症状的有效方法缺乏适当的了解,并且常常建议不恰当的治疗方法,如增加运动量或提供精神科服务。作者开展本研究的目的是分析患者与医护人员接触时的负面经历。患有ME和CFS且报告曾遭遇医生轻视态度的患者被要求通过国际在线调查中的开放式回答详细描述此次接触。参与者的回答按照帕顿概述的流程进行主题编码和分析。文中描述了与感知到的医生态度及其对患者幸福感的影响相关的新出现主题,并讨论了其影响。此外,我们还强调了关于医疗保健系统如何有效应对这个常被边缘化的患者群体的建议。