Davies A
J ET Nurs. 1992 Nov-Dec;19(6):207-12.
Thousands of ostomies are performed on children every year to treat a variety of acquired conditions and congenital anomalies. The parents of children with ostomies are faced with the challenge of successfully living with and managing their child's ostomy. These families need practical information and support, both from the professional community and from parents who have shared the responsibility of a child with an ostomy. A parental support network has been developed throughout the country to address some of the needs of these families. This article provides current information about the status of these networks: what they have to offer and how they can be accessed. These groups, which continue to evolve, demonstrate a trend within this unique population. The parents of a child with an ostomy no longer need to feel alone in their experience.
每年都有数千例造口术施用于儿童，以治疗各种后天性疾病和先天性畸形。患有造口术的儿童的父母面临着与孩子的造口术成功共处并进行管理的挑战。这些家庭需要来自专业群体以及承担过照顾患有造口术孩子责任的父母的实用信息和支持。一个全国性的家长支持网络已经建立起来，以满足这些家庭的部分需求。本文提供了有关这些网络现状的最新信息：它们能提供什么以及如何联系到它们。这些不断发展的群体展现了这一特殊人群中的一种趋势。患有造口术的孩子的父母在他们的经历中不再会感到孤单。
