Yeh Chao-Hsing, Chao Kuo-Yu, Hung Li-Chen
Graduate School of Nursing, Chang Gung University, Kwei-San, Tao-Yuen, Taiwan.
Psychooncology. 2004 Mar;13(3):161-70. doi: 10.1002/pon.728.
Part 1, the current paper describes the development and testing of a quality-of-life (QOL) assessment specifically designed for Taiwanese pediatric cancer patients (7-18 years) and their parents/caregivers. The assessment instrument was established based on a qualitative study, then refined using recognized item-analysis methods and pilot tested on a group of 25 patients. The final assessment instrument included three versions of the same instrument, a patient self-report (QOLCC-7-12, for children aged 7-12 years; QOLCC-ADO for adolescent aged 13-18 years) and a parent proxy-report (QOLCC-PAR). The final seven-subscale tool has a total of 34 items and was tested among 106 young cancer patients and 106 their parents. Psychometric properties of the measure were tested using item analysis, Cronbach's alpha, and a confirmatory factor analysis. Results suggest acceptable reliability and goodness of fit of this seven-scale measure. In order to test the factor validity of QOLCC, an independent group of 42 children with cancer participated. The results of confirmatory factor analysis shows the goodness of fit in QOLCC.
第一部分，本论文描述了一种专门为台湾儿童癌症患者（7至18岁）及其父母/照顾者设计的生活质量（QOL）评估方法的开发与测试。该评估工具基于一项定性研究建立，然后使用公认的项目分析方法进行完善，并在一组25名患者中进行了预测试。最终的评估工具包括同一工具的三个版本，一个患者自我报告（QOLCC - 7 - 12，适用于7至12岁儿童；QOLCC - ADO适用于13至18岁青少年）和一个家长代理报告（QOLCC - PAR）。最终的七分量表工具共有34个项目，并在106名年轻癌症患者及其106名父母中进行了测试。使用项目分析、克朗巴哈系数和验证性因素分析对该测量方法的心理测量特性进行了测试。结果表明该七分量表测量方法具有可接受的信度和拟合优度。为了测试QOLCC的因素效度，一组独立的42名癌症儿童参与其中。验证性因素分析的结果显示了QOLCC的拟合优度。
